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Since 2009, Epilepsy Ireland has invested over €1.5 million in more than 20 research projects across Ireland. These projects have covered a wide range of topics, including basic science, quality of life, health services research, and more. See our website for full details.

Our research priorities have always been guided by the voices of our members and service users - the people living with epilepsy and their families. Listening to you helps us decide which areas of research we should focus on.

Later this year, we will launch our 9th call for funding applications under the Health Research Charities Ireland/ Health Research Board (HRCI-HRB) Joint Funding Scheme. This scheme allows charities like Epilepsy Ireland to partner with the state’s health research body to jointly fund research on important health issues.

Before we issue this call to researchers, we want to hear your views on what kind of epilepsy research you think we should prioritise.

Please take a few minutes (around 10) to complete this short survey. Your input will help shape our next research funding call and ensure that we direct our limited resources to the most relevant areas.

We recommend reading through all the questions before starting.

Note: This survey is intended for people who are directly affected by epilepsy, whether you live with epilepsy yourself or support someone who does. If you are a healthcare professional or other stakeholder without a personal connection, we kindly ask that you do not complete the survey.

Thank you in advance for your time. If you have any questions, please contact Paddy McGeoghegan, Epilepsy Ireland’s Advocacy & Communications Manager, at pmcgeoghegan@epilepsy.ie.

Together, we can achieve a society where no person's life is limited by epilepsy.

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* 1. I am a:

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* 2. I was/my loved one was first diagnosed with epilepsy:

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* 3. Are you/your loved one seizure-free?

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* 4. Types of epilepsy research

There are many different types of research that can be undertaken. Below are the most common categories of research that might be undertaken in epilepsy along with a short explanation of each. Please rank these in order of how important you believe it is it for Epilepsy Ireland to fund research in these areas.

You can organise the options by dragging each box or by selecting a number from the drop-down. The type of research you think is most important should be Number 1 and at the top of the list; while the area of research you think is least important should be Number 8, at the bottom.

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* 5. Research Questions

Below are some specific research questions that Epilepsy Ireland may prioritise in our upcoming call for applications and when funding future research projects.

These questions are drawn from the Top 10 priorities identified by the UK epilepsy community (including people living with epilepsy, families, healthcare professionals, and patient organisations) as part of a comprehensive priority-setting process in 2022.

The list is presented in random order below, but you can find out more about the UK’s priorities on the Epilepsy Research Institute UK website.

Please rank the questions based on how important you believe it is for Epilepsy Ireland to fund research that addresses each one.

You can organise the options by dragging each box or by selecting a number from the drop-down. The type of research you think is most important should be Number 1 and at the top of the list; while the area of research you think is least important should be Number 10, at the bottom.'"

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* 6. Are there any other epilepsy research topics that you think Epilepsy Ireland should consider for funding?

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* 7. Please let us know the extent to which you agree with the following statement. "It is important that Epilepsy Ireland continues to invest in funding Irish epilepsy research"

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* 8. Please let us know the extent to which you agree with the following statement: "Epilepsy Ireland should prioritise funding research that focuses on improving the daily lives of people with epilepsy today, rather than research aimed at developing new treatments or understanding of the condition over the longer term."

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* 9. Do you have any other comments on epilepsy research or the Epilepsy Ireland research funding scheme? Please ensure you press "DONE" to submit your responses.

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