Welcome to this survey on Von Willebrand Disease (VWD) organized by the EHC

The European Haemophilia Consortium (EHC) is an umbrella organization representing 47 patient groups in Europe active in the area of haemophilia and other rare bleeding disorders, including Von Willebrand Disease (VWD). 

Each year, the EHC organises a survey to look at a particular aspect of comprehensive care in haemophilia and other rare bleeding disorders. For this year's survey, we will focus on Von Willebrand Disease (VWD). For this purpose, we have developed two surveys one for patient organisations and one for individuals. This survey focuses on how VWD affects individuals in their daily life. To do so survey will ask questions pertaining diagnosis, treatment and impact of VWD on quality of life and general health.

The data collected through this survey will be analyzed and published for information and advocacy purposes.

We wish to thank you for your contribution. Should you have any questions regarding this survey, please do not hesitate to get in touch with Laura Savini at the EHC office at (Laura.savini@ehc.eu). 

Thank you for your help!

The EHC team
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