Lifestyle of ME/CFS carers - Research Project by Amy Hill

Hello, my name is Amy Hill and I am currently completing my SACE Research Project.
I am focusing on Myalgic Encephalomyelitis (ME/CFS), and how it impacts the lifestyle of carers.
The information will be collated, analysed and placed into a folio. After the data is used for its intended purpose, I will permanently dispose of it.
I will not be recording names or personal details in your responses.
You are not obliged to answer all the questions.
This survey is designed to take less than 10 minutes and keep answers under 50 words.

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* 1. How sick is the patient that you look after? (Using the David Bell Disability Scale)
From: The Doctor’s Guide to Chronic Fatigue Syndrome by David Bell
2004. ME/CFS Guidelines For General Practitioners. 1st ed. [PDF] Adelaide, South Australia, p.13.
Available at:
https://www.sacfs.asn.au/download/guidelines.pdf
http://www.investinme.org/Documents/PDFdocuments/c6a_mecfsguidelines.pdf

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* 2. What relation are you care to an ME/CFS sufferer?

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* 3. What types of support do you provide? (check all that apply)

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* 4. How often do you care for the sufferer?

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* 5. How much support do you  provide?
(for example, amount of time, help with every activity, help with strenuous tasks only)

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* 6. What sort of support network is available to you? (check all that apply)

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* 7. How do you look after yourself?
(eg. social life, personal care)

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* 8. How has ME/CFS affected your relationships with the sufferer and extended family members?

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* 9. How has ME/CFS affected your lifestyle? Less than 100 words necessary.
(eg. prioritising activities, familial help, social life, economic, emotional struggle, employment, relationships with immediate family)

0 of 9 answered
 

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