1. About this survey

This survey is being conducted by LymeDisease.org (formerly CALDA) to assess the impact and cost of Lyme disease. Over 4,000 patients responded to our last survey on Access to Care and Burden of Illness, making it the largest survey of Lyme patients ever conducted. The results of that study, which found that Lyme patients suffered a significant burden of illness and had difficulty obtaining the health care they needed, were published in a highly regarded peer reviewed journal, Health Policy.

In order to progress through this survey, please use the following navigation links. Note that once you start the survey, you will need to fully complete it. (You cannot save it and return to it later.)

--Click the Next>> button to continue to the next page
--Click the Previous>> button to return to the previous page
--Click the Exit the Survey Early>> button if you need to exit the survey
--Click the Done>> button to submit your survey

If you have any questions, please contact me at lbjohnson@lymedisease.org. For more information on LymeDisease.org, go to www.lymedisease.org.

This survey is part of a research study being conducted by LymeDisease.org. The purpose of this research project is to assess the impact and cost of Lyme disease in the United States. For this reason, many of the questions focus on work and how Lyme disease affects work. Future surveys will address other issues of concern so as the effect of Lyme disease on children. Only submit one survey regarding any one person. To avoid duplicates, only one response is permitted per computer.

You are invited to participate in this research project if you have been diagnosed by a healthcare provider with Lyme disease, are 18 years of age or older, and live in the United States. Questions with an asterisk require an answer and are entry criteria for the survey.

This online survey will take approximately 20 minutes to complete.

Your participation in this research study is voluntary. You may choose to discontinue participation in the survey at any time. If you have any questions or if you wish to discontinue participation contact Lorraine Johnson at lbjohnson@lymedisease.org.

Your responses will be confidential and identifying information such as your name, email address or IP address will not be disclosed. We will do our best to keep your information confidential. All data is stored in a password protected electronic format or in a secure location.

Question Title


  Yes No
I have read and understand the above information
I voluntarily agree to participate
I am at least 18 years of age
I currently reside in the United States