European Heart Rhythm Association: Patient Survey “Living with ventricular tachycardia”

* 1. You are invited to take part in a patient survey titled ‘Living with Ventricular Tachycardia” conducted by the European Heart Rhythm Association Scientific Initiatives Committee (SIC).

Ventricular tachycardia (VT) is a dangerous abnormal heart rhythm from the lower chamber of the heart which can prevent it from working properly. The primary goal of this survey is understanding patients’ experience of having VT. The survey aims to better understand the long-term impact of VT management, including the use of medications and procedures (e.g. ablation for VT – where a catheter is inserted into the heart to find the area of the heart causing the abnormal rhythm).

The findings of this study will help inform the development of patient-reported outcome measures to be included in future clinical trials of VT treatments.

The survey is open to all patients who have previously experienced VT, including those who have had an implantable cardioverter defibrillation inserted and/or undergone catheter ablation for VT.

Your participation is anonymous, and all information provided in this study will be treated confidentially. Your identity will not be disclosed to any third party. We are conducting this survey in compliance with the European General Data Protection Regulation (GDPR) 2016/679. Any personal data processed in connection with this survey will be treated confidentially and only used by the ESC for the purposes of market research and not for promotion. Survey results will be kept for a maximum of 48 months for analysis and quality control purposes. We take all reasonable care to prevent any unauthorized access to your personal data. We respect your privacy and your right to access, modify, or remove your personal data. At any time, you can ask to know what personal data is being held. If you have any questions about data protection or require further information, please contact our data protection officer (DPO) at dpo@escardio.org.You have the right to refuse to participate in this survey at any time.

Please confirm that you have read the above and agree to participate in this survey