Important FAQs
Please review this section prior to submitting your application.

The Fanconi Anemia Research Fund may provide support to FA patients who wish to participate in clinical trials relating to Fanconi anemia. When funds are available, FARF shall offer scholarships for families to defray all or part of the reasonable transportation, meal, and lodging costs associated with participating in a trial. Funds are issued to awarded recipients as a reimbursement following confirmed participation in the trial. Should there be a need for scholarship funds prior to making travel arrangements, please notify us in the additional comments section. Please review the reimbursement policy and process here. 

It is the responsibility of the applicant to research and estimate the costs of airfare, lodging, ground transport, and total assistance required. Incomplete/inaccurate information may lead to a greater chance of a partial scholarship award. 

How many travelers will the scholarship cover?

Travel assistance may cover the person with FA and one primary guardian, caregiver, or support person, although exceptions to include additional travelers may be considered. Need for additional travelers should be clearly stated within the application.
 
Do NOT book travel prior to acceptance by the clinical trial program and being notified by FARF that your travel scholarship application has been approved.

Eligibility Criteria: 
  • You have been diagnosed with FA or are the guardian to a person with FA and are completing this form on their behalf.
  • The person with FA is registered with the Fanconi Anemia Research Fund, Family Services (you may register here)
  • The clinical trial does not cover travel related costs.
  • You would be unable to participate in this clinical trial without financial assistance.
  • You have received confirmation from the principal investigator of the trail that the person with FA meets eligibility criteria for the trial (once the application is received, FARF staff will contact the principal investigator to confirm plans for participation).
Application Process:

Interested individuals with FA and/or their parent/guardian may complete the following application form.

To accommodate accessibility needs, other methods of applying include:
  • Phone/Zoom interview: You may schedule a meeting with Jordan to discuss the answers to this application (541) 687-3658 x301.
  • Video submission: You may submit a video of yourself addressing the application questions. Please submit video to Jordan@fanconi.org. 
Selection Process & Timeline:

The FA scholarship committee will be blinded to the applicants personal identifying information. The committee will review the application and make an evaluation based upon the eligibility criteria. Any additional comments included in application will also be taken into consideration, however, a personal statement is not required.

While the scholarship committee may review your application sooner, please allow for up to two weeks for review after submission. FARF staff will notify you of your application status once reviewed by the committee.

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* 1. Applicant information (If you are an adult with FA and are applying yourself, skip to the next question)

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* 2. Information about the person with FA

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* 3. Is the individual with FA currently registered with the Fanconi Anemia Research Fund?

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* 4. Have you ever participated in a clinical trial?

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* 5. If yes, which trial? (please provide the name of the trial)

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* 6. Are you currently participating in any other clinical trials?

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* 7. If yes, which one? (please provide the name of the trial)

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* 8. Trial institution information (specific to this application)

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* 9. Description of the clinical trial (please include how many trips are required, when the trial is expected to start, and the length of the trial):

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* 10. Briefly explain why you'd like to participate in this trial

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* 11. Does the trial institution cover any travel related costs?

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* 12. If yes, please describe the expenses and amount covered by the trial institution

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* 13. Do you have the means to participate in this trial without scholarship assistance?

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* 14. If approved, would you be willing to share your experience as a participant in this trial with the FA community, either through FARF branded, written or video content? (Answer will not increase or decrease the likelihood of application approval)

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* 15. Number of travelers

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* 16. Primary mode of transportation

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* 17. If traveling by airplane, please estimate the total roundtrip cost (USD$) (if multiple trips will be made, estimate total cost for all necessary trips)

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* 18. If traveling by ground, please estimate the costs for the following (USD$) (Note: Ground transportation includes airport parking, Uber/Lyft/taxi, train, and/or shuttle services during all acceptable travel dates. You are expected to use the least expensive option when available.) See reimbursement policy for complete information.

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* 19. Please provide the following information for lodging (if multiple trips are required, please include estimates for all necessary trips)

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* 20. Estimated total meal costs (Note: when approved, FARF will reimburse only up to $15 USD (including tip) for each breakfast and lunch or only up to $20 USD (including tip) for dinner.)

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* 21. Estimate total scholarship request amount (USD$)

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* 22. Anything else you'd like us to know? 

 
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