Thank you for taking the time to share your feedback on the draft of the manuscript “Cystic Fibrosis Newborn Screening: A systematic review-driven consensus guideline of the Cystic Fibrosis Foundation.” This guideline aims to describe NBS program practices that improve equity, sensitivity, and timeliness in diagnosing infants with CF. Through implementation, we anticipate improved health outcomes for all individuals with CF diagnosed following NBS.

Please note:
  • The content of the draft guideline is technical, and the target audience is the state public health labs that perform newborn screening. We encourage you to review the manuscript and provide feedback as it applies to your experiences and expectations.
  • This draft guideline for CF newborn screening does not change how CF is diagnosed. For information on diagnosis, please see the diagnosis guideline.
  • This draft guideline offers recommendations to newborn screening programs and pediatricians/primary care physicians on best practices in CF newborn screening based on a systematic review of the literature and expert opinion. These recommendations are not rules, and once they are published, the CF Foundation will partner with CF care teams and newborn screening programs to support adoption of these recommendations.

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