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Introduction

Question Title

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PURPOSE OF THE SURVEY

This survey has been developed by the European Federation of Neurological Associations (EFNA) to assess the lived experience of neurology patients and caregivers in accessing a diagnosis and care pathway in Europe.

The aim is to identify, report and begin to address the varied challenges facing all affected by neurological conditions, either as patients or caregivers, from diagnosis to care pathway.
Data generated through this survey can be used to address the unmet needs and challenges facing all affected by neurological conditions.

Findings from the survey will be published on the EFNA website later this year.

The survey will be open until 19/04/2022.
PARTICIPATION IN THE SURVEY

This survey is open to anyone over the age of 18 who is living with a neurological disorder, or who is carer to someone living with a neurological disorder, that resides in Europe. The survey should take approximately 20 minutes to complete.

Your participation in this survey is voluntary; and you can withdraw at any time if you change your mind.

The survey is completely anonymous. The data will be stored and analysed by EFNA, as per our data protection and privacy policies. If you would like any additional information please do not hesitate to contact orla.galvin@efna.net.

If you would like to proceed with participating in this survey, please provide consent.
By providing consent you are telling us that you:
  • Understand what you have read.
  • You are 18 years or over.
  • Consent to take part in the research project.
  • Consent to the processing of your information for the purpose described in the introduction to this survey.
By clicking ‘next’ you agree to your involvement in the survey to understand issues surrounding access to diagnosis and care pathways for neurological conditions and confirm you have read and understand the information provided.

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