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* 1. Dear parent and/or family member,

Thank you for contacting the Foundation for Angelman Syndrome Therapeutics.  FAST is a nonprofit organization founded by parents and dedicated to improving the lives of individuals living with Angelman syndrome.  We are here to assist you understand the steps necessary to take as your child becomes an adult. Your consultant will address your concerns and support you with understanding the process of your child turning 18 or having turned 18 within the last two years.

We have eight survey questions for you, and we sincerely appreciate your input and participation. You are not alone in this process! FAST is here to encourage and support you as you navigate the process and learn about your critical role as a parent of an adult individual with Angelman syndrome.

Sincerely,
The Foundation for Angelman Syndrome Therapeutics


As we begin the survey, FAST would like to know some general information about your family supported by our Adult Transition Program.

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* 3. What is the genotype of your child with Angelman Syndrome?

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* 4. Overall, how prepared do you feel as the parent/caregiver to navigate the resources and options as your child transitions to adulthood before visiting with our Adult Transition Consultant?

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* 5. Which of the following area(s) of your child entering adulthood would you like the Adult Transition Consultant able to help you with? Please check all that apply.

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* 6. FAST is excited to support to our families during this transition period. If FAST were not offering this service, how else might you have met this need?

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* 7. Do you have any other comments, questions, or concerns that you feel would be helpful to share with FAST and/or the Adult Transition Consultant that will help with your child's transition to adulthood?

Specifically list what you hope to accomplish with the assistance of an Adult Transition Consultant.

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* 8. By submitting this intake form and requesting the assistance of a FAST Adult Transitioning Liaison, you understand and agree to the following (you must agree to all of the following [as indicated by checking each box below]):

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