Question Title

* 1. I am a (chose all that apply):

Question Title

* 2. Your age, or, if you are a parent/spouse/partner/sibling, the age(s) of your affected family member(s)

Question Title

* 3. Where do you currently reside?

Question Title

* 4. Do you live in:

Question Title

* 5. How far must you travel to receive care at your CF Center?

Question Title

* 6. What is your gender?

Question Title

* 7. What type of health insurance do you/your loved one with CF have?

Question Title

* 8. Which of the following CF-related symptoms do you or your loved one cope with on a regular basis? (Include all that apply.)

Question Title

* 9. Of the symptoms you cope with, what are the 4 issues that most significantly impact your or your loved one’s quality of life?

Question Title

* 10. Select the three most important things you or your family member with CF have found to be more challenging because of your/his/her diagnosis with cystic fibrosis:

Question Title

* 11. How has the impact of your/your loved one’s cystic fibrosis changed over time?

Question Title

* 12. Select the top three (3) issues that worry you/your loved one the most about life with cystic fibrosis:

Question Title

* 13. What are you/your child currently doing to help treat the condition or its impacts? (Select all that apply):

Question Title

* 14. In considering the financial costs and time requirements related to the above therapies, in general, how much do these medical devices/equipment, medicines, and/or counseling improve your or your affected family member’s quality of life:

Question Title

* 15. How have treatment options for cystic fibrosis changed for you or your loved one since you or your affected family member was first diagnosed?

Question Title

* 16. What is your experience with, and perception of, clinical trials for a new drug to treat cystic fibrosis?

Question Title

* 17. If you have participated in a clinical trial but would not do so again, what are your reasons? (Select top 3 reasons):

Question Title

* 18. What would discourage you from participating in a clinical trial for a potential new cystic fibrosis therapy?

Question Title

* 19. What would be the most important impacts from a new treatment for you or your affected family member? (Pick your top 4):

T