Information Letter

Principal Investigators:

Paul MacPherson, PhD, MD, FRCPC
OHTN Research Chair in Gay Men's Health
Associate Professor of Medicine
The Ottawa Hospital

Patrick O'Byrne, NP, PhD

Associate Professor of Nursing
University of Ottawa

Funded by:

The Ontario HIV Treatment Network
1. Background
Men in general and gay men in particular may not be receiving optimal primary and preventative healthcare. A number of health conditions including depression, anxiety, HIV infection, and anal cancer are more common among gay and other men who have sex with men compared to heterosexual men. We need to do something about this. Your participation in this survey will provide information that will set us on the road to address these health inequalities and to develop a healthcare delivery model that is responsive to the health needs and concerns of gay and other men who have sex with men.
2. Research objectives
In order to improve the health of and healthcare delivery to gay men, we need to hear from gay men. We want to learn how you are accessing healthcare, how you want healthcare delivered, and what are your health concerns and health priorities. The purpose of this is to then develop, implement, and evaluate a healthcare delivery model that responds to the health concerns and health needs of gay and other men who have sex with men in Ontario.
3. Contribution of participants/participation
Participation in this study involves completing a one-time on-line survey consisting of 83 questions that will take approximately 30-40 minutes to complete.
4. Risks associated with your participation
The researchers are aware that certain questions in the survey may evoke distress or anxiety on your part. If you feel anxious or have any questions or concerns after completing the survey, you are strongly encouraged to talk with your family doctor or other healthcare provider about those concerns.
5. Confidentiality and anonymity
This survey is completely anonymous. No identifying information will be collected on this survey and your answers can in no way be linked back to you. All information collected from the surveys will be pooled together for analysis to look for averages and population trends.
6. Conservation of information and communication of results
The anonymous survey data will be kept in a locked file cabinet in the researcher’s office or on a secure server at the Ottawa Hospital or other secure facility for 25 years. By participating in this research, you accept that the pooled results obtained from an analysis of the combined surveys may be used to develop healthcare programs, inform healthcare policies and for teaching purposes, and may be published in academic journals or community press.
7. Main benefits anticipated from this research
Gay and other men who have sex with men must have a voice in healthcare. By participating in this research you are helping us learn about your health concerns and healthcare needs. This will enable us to develop innovative models of healthcare delivery for gay and other men who have sex with men. With this information, we hope to develop clinical toolkits to inform family physicians on relevant aspects of gay men’s health and engage gay men in their healthcare through innovative programs. We hope this will increase awareness of, access to, and retention in healthcare for gay and other men who have sex with men in Ontario.
8. Voluntary participation
You are under no obligation to participate in this research; if you choose to participate you may withdraw from the research at any time by simply closing your browser. If you choose to withdraw by closing your browser, no data will be collected.

Please note: Because no identifying information is asked as part of the survey nor is any identifying information attached to the survey, once you submit the survey, it is not possible to have your answers withdrawn.
9. Additional questions or comments related to this research
The researchers are available to answer questions you may have about this research, and can be contacted at 613-737-8899 ext 73896. The Ottawa Health Sciences Network Research Ethics Board (OHSN-REB) has reviewed the plans for this research study. The Board considers the ethical aspects of all research studies involving human participants at the Ottawa Hospital Research Institute. If you have any questions about your rights as a study participant, you may contact the Chairperson at 613-798-5555, ext 16719.
Thank you for your participation!

T