If you live with ichthyosis or a related skin condition OR you are the parent/primary guardian for someone (younger than 18) who does, please take 10-15 minutes to answer our survey questions. If you are a parent of a young child or infant for whom some of the questions may not apply or may be difficult for you to assess, please select unsure or not applicable (N/A) and answer to the best of your ability.

Your answers are confidential and will help to deepen our understanding of your experience with the condition and identify unmet needs and gaps in care. Thank you, in advance, for your time.

Please only complete the survey once. If you have any questions, please contact Chris Boynton at cboynton@firstskinfoundation.org.

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