By completing this survey, you will be providing us with vital information about the journey to diagnosis of the patient on whose behalf you are answering these questions. These results will provide unique insight to engage, educate and inform the medical community on this rare disease.
THE QUESTIONNAIRE IS ON THREE PAGES - BE SURE TO COMPLETE ALL THREE PAGES AND ANSWER ALL QUESTIONS. THANK YOU!
 

* 1. What is your relationship to the patient?

* 2. Please tell us if the patient is currently living or deceased?

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