The Li-Fraumeni Syndrome Association (LFSA) is in the process of assessing the extent to which Whole Body MRI (WBMRI) is recognized as standard of care for LFS surveillance. LFSA membership and medical advisors report diverse experiences with health insurance coverage and payment of Whole Body MRI (WBMRI) as LFS surveillance.

As a result of anecdotal findings regarding insurance coverage for WBMRI, the LFSA is fielding a survey with patients and providers to assess their experiences. The goal of the survey is to understand the extent of health plan coverage and payment for WBMRI as surveillance for LFS. Sharing your information will help us better understand the next steps on education and awareness with insurance carriers and providers regarding WBMRI as standard of care for LFS surveillance.