Confidentiality: All information you supply during the research will be held in confidence. Your name and your child, youth, or young adult's name will not appear in any report or publication of the research. Your data will be safely stored in a locked facility and/or on a password protected computer and only research staff will have access to this information. Data will be stored for the duration of the study and will subsequently be destroyed. Confidentiality will be provided to the fullest extent possible by law.
The researchers acknowledge that the host of the online questionnaire (SurveyMonkey) may automatically collect participant data without their knowledge (e.g., IP addresses). Although this information may be provided or made accessible to the researchers, it will not be used or saved without your consent. Because this project employs e-based collection techniques, data may be subject to access by third parties as a result of various security legislation now in place in many countries and thus the confidentiality and privacy of data cannot be guaranteed during web-based transmission.
Questions About the Research? If you have questions about the research in general or about your role in the study, please feel free to contact Dr. Rebecca Bassett-Gunter by email (firstname.lastname@example.org). This research has been reviewed and approved by the Human Participants Review Sub-Committee of York University’s Ethics Review Board and conforms to the standards of the Canadian Tri-Council Research Ethics guidelines. If you have any questions about this process, or about your rights as a participant in the study, please contact the Senior Manager and Policy Advisor for the Office of Research Ethics, 5th Floor, York Research Tower, York University (telephone 416-736-5914 or e-mail email@example.com).
Legal Rights and Signatures: I consent to participate in UNDERSTANDING PERSPECTIVES ON HEALTH BEHAVIOURS AMONG PARENTS OF CHILDREN, YOUTH, AND YOUNG ADULTS WITH AN INTELLECTUAL DISABILITY OR AUTISM by Dr. Rebecca Bassett-Gunter. I have understood the nature of this project and wish to participate.