The Parent/Professional Advocacy League (PPAL), a family organization, is conducting a survey of Massachusetts families whose children have behavioral health and other special needs.

Families have reported what helps and what doesn’t in accessing care for their child. Factors such as insurance and school services can play a big part. So can experiences such as whether parents receive information they need or if they feel listened to. In this survey, we’d like to find out how stigma, culture and previous experiences have affected you.

Please fill out only one survey for your family. This survey is intended for parents and family members of someone who is age 3 to 26. If you have more than one child, choose ONLY ONE when responding to the survey questions.

This survey should take about 26-28 minutes to complete. All responses to this survey are ANONYMOUS and results will only be reported in aggregate form, such as percentages.

At the end of the survey is a link to a raffle. There will be a weekly raffle for a $20 Amazon gift card.

Thank you very much for taking the time to complete the survey. We appreciate your honesty and participation. Please contact Lisa Lambert at if you have any questions or would like a copy of the survey results.
First please answer a few questions about YOU.


* 1. Do you live in Massachusetts?

* 2. What is your zip code?

* 3. Are you the primary caregiver of a child, youth or young adult with special health care needs? Your child does not have to have an official diagnosis.

* 4. How would you describe your gender?

* 5. How would you describe yourself?

* 6. What is the primary language you speak at home?

* 7. What is the highest level of school you have completed or the highest degree you have received?

* 8. How often do you go to a house of worship (church, synagogue, mosque)?

* 9. For how many years have you lived in the United States?