A little about this survey...

You are invited to participate in a research study into your experiences of the Cancer Council Online Community. The study is being conducted by the research and evaluation team at Cancer Council NSW (CCNSW).

‘What is the purpose of this study?’

To look at the experiences of people who have used the Online Community. This information will help CCNSW improve the online service and better meet the needs of people affected by cancer.

‘Why have I been invited to participate in this study?’
You are eligible to participate in this study because you have visited the Online Community.

‘What if I don’t want to take part in this study, or if I want to withdraw later?’
Participation is voluntary. If you decide not to participate, it will not affect your relationship with the Online Community, or Cancer Council in general. If you wish to withdraw from the study once it has started, you can do so at any time without having to give a reason.

‘What does this study involve?’
You will be asked to complete an online survey, which will take approximately 15 minutes of your time. The survey is anonymous and asks questions about how you use the Online Community, your reasons for visiting, your experiences online, changes that you have noticed (e.g., feeling more informed or less stressed), your use of other Cancer Council services and some demographic information (such as your age, gender and current situation). If you choose to fill out the survey, that will be taken as your consent to participate.

‘Are there risks to me in taking part in this study?’
The risk of discomfort because of the survey in this study is minimal (1 out of 10). In the unlikely event that you may feel uncomfortable, you can contact the Online Community Coordinator through the Online Community or call Cancer Council 13 11 20 Information and Support telephone service. The service is staffed by health professionals, and they are available Monday – Friday, from 9am to 5pm.
‘Will I benefit from the study?’
It is not anticipated you will benefit directly from participating in this study, but results will be used to improve the Online Community.

‘Will taking part in this study cost me anything, and will I be paid?
Participation in this study will not cost you anything (besides your time) nor will you receive any payment for participation in the survey.

‘How will my confidentiality be protected?’
The online survey is anonymous, so the research team will not know who you are. The Online Community Co-ordinator will also not know if you have decided to participate in the survey. The results will only be shared with them in summary form.

The data from the survey will be stored in CCNSW Systems that use the online Microsoft Dynamics 365 (MD365) cloud platform. This system provides secure access across platforms and devices, with anti-spam and antivirus technologies that are automatically updated to protect against the latest threats. The security features and services are built in, meeting all compliance requirements.

‘What happens with the results?’
If you agree to participate in the study, the results will be used to provide evidence about the effects of the Online Community. Results may be presented at conferences, or written up for journal publications. In any publication, information will be provided in such a way that you cannot be identified. A summary of the results will also be made available in the Online Community so you can view them.

‘What should I do if I want to discuss this study further?’
If, after reading this information, you have any queries, or you would like to know more at any stage, please do not hesitate to contact the Online Community Coordinator through the online platform.

‘Who should I contact if I have concerns about the conduct of this study?'
This study has been approved by the Cancer Council NSW Ethics Committee. Any person with concerns or complaints about the conduct of this study should contact the Research Governance Officer (Dr John Williams) on 02 (9334 1993) or email ethics@nswcc.org.au and quote HREC #317.

Thank you for taking the time to consider this study.
9% of survey complete.