Background

The contribution of patients, patient groups, and patient experts provides tangible value to other stakeholders and society that should be fairly compensated. Currently, there is no transparent and consistent system in place for financial compensation that reflects the level of individual contribution and expertise of patient partners. WECAN previously surveyed an extensive number of patients and patient representatives in Europe and beyond.

This questionnaire is aimed at completing the picture from the various stakeholder points of view and inform the various projects addressing this issue. If you have already completed the WECAN survey, there is no need to take it again.

Compensation in the context of this survey means honoraria or other payment by third parties (not patient organizations) for individual tasks such as advisory boards, presentations, providing feedback, reviewing complex documents, etc.
Reimbursement of out of pocket expenses such as travel cost, accommodation, meals, etc. do not count as financial compensation for these tasks or for expertise.

We appreciate your input to assess the importance of different criteria to determine a Fair Market Value (FMV) for the compensation of patient input and expertise. Your responses will help formulate a clear recommendation on the topic.

(This survey is open to all stakeholders relevant to patient engagement and involvement in the medical product, development and delivery phases and lifecycle) 

Question Title

* 1. Information about you

Personal information (Name, email) will not be provided to any third party - the information is collected to allow us to get back to you in case of further questions and to share the overall results with you. Results will only be published in an anonymized form.

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