Thank you for your interest in participating in our study.

The aim of the Child Neurology Foundation Caregiver Perspectives on Transitions Project is to better understand parent/caregiver perspectives in key aspects of transition to adulthood for those living with complex neurologic conditions, which often include intellectual and developmental disabilities. Online focus groups and surveys will explore and highlight medical transitions, as well as transitions related to community-based supports, residential services, and social/recreational supports. 

Eligible participants must: 

(1) be a parent or caregiver of an individual age 12-30 years living with a complex neurologic condition who is not expected to live fully independently in adulthood;

(2) be at least 18 years old; and 

(3) have access to a computer with ability to connect to either Skype or Google Hangouts.(only needed for online focus groups)

Please take a few moments to answer the items below. Responses are required to be considered for participation. You will be notified via email if you have been selected. 

Limited spots are available for the focus group phase of the study. However, there may be additional opportunities to participate in the Caregiver Perspectives on Transitions Project surveys later this year. We would be happy to keep your name and email on file for such opportunities and include you in CNF’s Partners email list, so you can stay up-to-date on all CNF activities.

* 1. Tell us about yourself and your child:

* 2. Please tell us about your child/young adult, including his/her primary condition or diagnosis and anything else you'd like to share.

While spots for the online focus groups are limited, there may be additional opportunities to participate in different aspects of this project later this year. We will be happy to add you to our CNF Partners email list so that you will be the first to know of such opportunities! 

Visit anytime to learn more about CNF's current transition initiatives. 

Thank you again for your interest.