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Lifeline Survey Jan 2012

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* 1. On a scale of 1 to 5 (with 1 being NOT AT ALL helpful and 5 being VERY helpful), how helpful do you find the overall information presented in this issue of LIFELINE?

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2

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4

5

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* 2. On a scale of 1 to 5 (with 1 being very DIFFICULT and 5 being very EASY), how easy to understand do you find the information presented in this issue of LIFELINE?

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2

3

4

5

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* 3. On a scale of 1 to 5 (with one being NOT very successful and 5 being VERY successful), how successful do you think this issue of LIFELINE is in presenting its information?

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2

3

4

5

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* 4. True or False. At this time, bone marrow transplantation is not usually recommended for adults with thalassemia.

True

False

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* 5. True or False. Blood clots may be more common in individuals with beta thalassemia intermedia than in those with beta thalassemia major.

True

False

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* 6. An EKG is

A. an electrocardiogram

B. an echocardiogram

C. also called an "echo"

D. None of the above

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* 7. What, if anything, could have been changed to make this issue of LIFELINE more effective?

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* 8. What information on thalassemia or thalassemia-related issues would you like CAF to present in future issues of LIFELINE?

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* 9. How would you prefer to receive LIFELINE?

In the mail, as a printed publication.

As a downloadable online publication.

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* 10. Please share any other comments, concerns or observations here.