This survey is for anyone who is currently caring for or has cared for someone diagnosed with a brain tumour. We are gathering information to learn about resources and information provided to caregivers at the time of the initial diagnosis, during treatment and beyond.

Thank you in advance for sharing your experiences to help us create a comprehensive resource for others caring for someone diagnosed with a brain tumour. This survey will take less than 10 minutes to complete.

This survey will remain open until noon EST on Tuesday, March 6, 2018. 

* 1. Please indicate your age. I am:

* 2. Please indicate your relationship with the person diagnosed with a brain tumour. I am a:

* 3. Please indicate whether you are the sole provider of care in the home or if you have help from others:

* 4. Please indicate the type of caregiver you are. I am a:

* 5. The person I care(d) for was diagnosed with a:

* 6. When was your loved one diagnosed? (please provide an approximate timeframe)

* 7. The person I care for is:

* 8. A brain tumour diagnosis not only impacts the person diagnosed but may also cause additional stress to others. How would you categorize the level of additional stress you’ve experienced due to your loved one’s diagnosis?

* 9. Thinking about the provision of care you provide to your loved one, which care-related activities have you helped with. Please check all that apply

* 10. Where have you searched for information about brain tumours, support for caregivers or patients? Please check all that apply.

* 11. Please indicate whether the resource(s) was / were helpful or unhelpful to you. Please provide the names of services and resources (including books and websites) that have been helpful to you and that may benefit other caregivers.

* 12. Did you receive the Brain Tumour Foundation of Canada -  Brain Tumour Handbook (Adult, Pediatric or Non-Malignant)?

* 13. What were 2-3 of your biggest concerns when your loved one was initially diagnosed that you believe could have been addressed in a timely manner or with better information?

The goal of this resource is to provide information to help caregiver’s during a brain tumour diagnosis, treatment and beyond. This section will help us identify gaps in service.

* 14. Please indicate your most pressing UNMET needs for information or support and tick all that apply:

* 15. Is there anything else you would like to add? Please share any other comments or suggestions you have for the new Resource for Caregivers we are developing:

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