At Arthritis Consumer Experts (ACE), we know when a person receives a diagnosis of arthritis, a new life journey starts and their role as self-advocate immediately begins because we are led by people living with arthritis. We’ve been there, and we are with you.

No one knows arthritis better than those who live with it every day. Self-advocacy may increase your ability to look for, assess, and use information to improve your own health. It can help you regain control of your life and build strategies and tools to live your best life. How does self-advocacy work in real life? When you share your story and experiences with family or friends, your healthcare team, work colleagues, community leaders and elected officials, you help them understand how their actions affect you.

At the end of the day, self-advocacy requires you to be able to say what you need, how you need it and when you need it from the healthcare system and can be the difference between a life well lived with arthritis – or not. The ACE National Survey on Arthritis Self-Advocacy wants to hear from you about what you know about yourself and your disease, where you go to learn about things that are important to you, and how you go about self-advocating for what you need.

About this survey:
  • Takes approximately 12 minutes to complete 
  • Your participation in the survey will be anonymous and your answers will be pooled together with others when analysed
  • Your identity will not be known, and the results will remain in a secured database
Click here to read SurveyMonkey’s privacy policy.   

Thank you in advance for taking the time to help ACE understand your experience with your own self-advocacy efforts. We are very grateful for your participation. Based on the results of this survey, ACE will work to improve or build new resources to help people living with arthritis to effectively self-advocate for themselves. We will also share the survey results with community leaders and government and private sector decision makers to ensure they are aware of how arthritis affects people living with the disease.
12% of survey complete.