Welcome to the MULTI-ACT Patient Engagement Survey

MULTI-ACT is a 3-year European project started in 2018 that aims to develop brand new tools to foster the true engagement of all stakeholders in Health Research and Innovation and maximize the impact and effectiveness of patient engagement. Engaging patients in scientific research can really make a difference, providing relevant information and helping to integrate the scientific perspective with patient’s experience of the disease. To do this, it is important to create the ideal conditions for this partnership. The MULTI-ACT project proposes the Multi-Stakeholder Research Initiatives (MSRIs) to use an Engagement Coordination Team to activate a strong collaboration among different stakeholders. This requires innovative strategies, specific skills, as well as methods and measurement systems to assess the effectiveness of multi-stakeholder initiatives throughout the research process.

With this survey we intend to consolidate the vision and include your contribution in the final guidelines.

The estimated time to complete the survey is about 15-20 minutes. You have the right to skip any question for any reason. Please note the survey must be completed in one time. It is not possible to save and come back. 
The information you provide will only be used for research purposes and be kept completely confidential. Your identity will never be made public, and the data you provide will never be shared with a third party for commercial use.

For more information about the MULTI-ACT patient engagement strategy you can read this introduction.
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By clicking 'next' below to start the survey you agree to participate in this consultation and acknowledge that your information will be transferred to survey monkey for processing.  
Thank you for your time and participation in our survey. Your feedback is important. 
If you have any questions regarding this consultation, please contact:
Deborah Bertorello, Italian Multiple Sclerosis Foundation, Leader of Work Package n.1 “Enabling science with/of patient input” (deborah.bertorello@aism.it)

If you have inquiries regarding the overall project, please contact:
Paola Zaratin, Italian Multiple Sclerosis Foundation, MULTI-ACT Coordinator (multi-act@aism.it)
European Brain Council, Leader of Dissemination (multiact@braincouncil.eu)