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Consent and Demographics

University of North Georgia Institutional Review Board (IRB)
Title of the Study: Diabetes Information, Care and Management Study
Study Number: 2022-009
Principal Investigator: Annmarie Jackson, PhD
Co-Investigator(s): Juliet Jordan-Joseph, Pharm.D., MS, BC-ADM, CDCES
Overview of Key Information
·      Goal is to determine how caregivers and patients find diabetes information and care, and to
       uncover the challenges that caregivers and patients face in managing diabetes.
·      The survey will take 10 minutes.
·      You will be asked to complete a short survey in Survey Monkey.
·      We will ask caregivers to share information about how they manage their patient's
       diabetes, where they search for information and seek care for the individual. 
·      We will not ask for information that could be used to identify you or the patient.
·      The risk is the same as when you are doing a taking a routine test or a questionnaire
·      The survey will help to create an app that will improve access to diabetes resources.
·      While there is no immediate benefit to you or the patient for completing the survey, your
       responses will help to create a cloud-based App that will benefit people with diabetes .

You have been asked to take part in a research study. This consent form describes the research study and gives you information you need to know before deciding whether to take part. You may freely choose whether or not to take part in the study; participation is completely voluntary. At the end of the form we will ask you to confirm that you voluntarily agree to be part of this study.

Why is this research study being done?
This study will help researchers to identify the challenges that caregivers and patients with diabetes face in finding diabetes information and care. The aim is to create an App that would improve access to various diabetes resources. We plan to recruit 37,919 people for this study.

What are you being asked to do?
You will be asked to complete a 10-minute survey in Survey Monkey. The survey will ask you to provide information about your patient's diabetes, how you search for information, where you go for their diabetes care and the tools you use to manage their diabetes. It will also ask you to talk about the challenges you face in managing diabetes.

How will we use your private information?
In this study, we will ask you to provide information about your patient's diabetes and how you look for information or seek care--information that you might not want other people to know. We will use your information to understand how these factors affect diabetes management.

What are the risks?
The risk is the same as taking a routine test or questionnaire

What are the benefits of being in this research study?
You will not benefit directly from this research study. However, the information you provide will help the researchers to understand the challenges that caregivers face in managing their patient's diabetes and will help to develop an App to improve access to diabetes resources.

What will we pay or give you in exchange for being in this study?
You will not be paid for taking part in this study.

Who can you contact if you have questions?
For questions about this study, you can email the principal investigator, Annmarie Jackson, PhD at annmarie.jackson@ung.edu. For questions about being a research participant, please contact the chair of the Institutional Review Board (irbchair@ung.edu) or the Assistant Director for Research Integrity, Dr. Troy Smith, 3820 Mundy Mill Road, Oakwood, GA 30566, 678-717-3670, troy.smith@ung.edu.

What are your rights as a research study volunteer?
Your participation in this study is voluntary.  You may choose to stop or leave the study at any time without a penalty and your information will be destroyed.

Question Title

* 1. Please confirm that you understand:
I have read this consent document. I have been able to ask any questions I have about the study. I have been able to tell the researcher about my concerns. The researcher has answered my questions and responded to my concerns. I believe that I understand the research study, the potential risks, and the potential benefits. By selecting "Yes" I consent to taking the survey.

Do you consent to taking the survey?

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