Informed Consent

 
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The George Washington University (GWU) is conducting a survey of clinical cancer survivorship programs to better understand how post-treatment care is organized. Specifically, we hope to identify services offered and describe how they are delivered. We welcome the participation of any cancer center with a survivorship program.

If you choose to participate in this study, you will complete the following survey. Results will be used inform a comparative effectiveness study that you may be eligible to participate in. If selected to participate in the comparative effectiveness study, participation supports clinical trial enrollment for institutions seeking accreditation from the Commission on Cancer.

Identifying information provided in the survey will only be used to follow up with programs selected to participate. Programs that do not have a clinical survivorship care program or whose clinical survivorship care program exclusively serves pediatric patients are not eligible for this study. If you are not the appropriate contact or do not feel knowledgeable enough about the clinical survivorship care program, please forward this survey on to the appropriate contact.

Taking part in this survey is entirely voluntary. Your institution/ employment will not, in any way, be affected should you choose not to participate or if you decide to withdraw from the study at any time. Possible risks include loss of confidentiality; however, every effort will be made to keep your information private. Results will be reported anonymously, and identifiable program information will not be shared with the Commission on Cancer. You will not receive any personal benefit from participating; however, your answers may help improve the quality of care cancer patients receive after treatment ends.

This study is funded by the Patient-Centered Outcomes Research Institute (PCORI) and was deemed exempt by the GWU Institutional Review Board (IRB #101308). The George Washington University Office of Human Research can provide further information about your rights as a research participant at (202) 994-2715. If you have questions or would like more information about this study, please email us at survivorship@gwu.edu.

Your willingness to participate in this study is implied if you proceed to the survey.

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