Huntingtons Queensland survey 2021

Your comments will help us to plan and deliver the best services we can for people impacted by Huntington's disease (HD) in Queensland. Thank you.

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* 1. Please tell us your age

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* 2. Please tell us where you live

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* 3. What is your connection to Huntingtons Queensland?

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* 4. Are you a member of Huntingtons Queensland? 

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* 5. What do you think is the purpose of Huntingtons Queensland?

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* 6. Please rate the importance of the following Huntingtons Queensland services

  Very important Important Unimportant Don't know
One on one support
Family support
Non-clinical counselling
Welfare support (eg. Centrelink, Medicare)
Support at the RBWH's HD clinic
Accessing the NDIS
Support groups
Community events
Information services
Education for workers
Referrals
Advocacy on your behalf
Research updates
Social media
Website

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* 7. Please rate your level of satisfaction with Huntingtons Queensland's services. (If you have not used a particular service, please mark N/A)

  Very satisfied Satisfied Neutral Dissatisfied Very dissatisfied Not applicable
One on one support
Family support
Non-clinical counselling
Welfare support (eg. Centrelink, Medicare)
Support at the RBWH's HD clinic
Accessing the NDIS
Support groups
Community events
Information services
Education for workers
Referrals
Advocacy on your behalf
Research updates
Social media
Website

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* 8. Is there anything you would like to add about a specific service? 

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* 9. Do you currently receive or expect to receive an NDIS package in the next 12 months?

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* 10. If you have an NDIS package, how satisfied are you with it?

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* 11. If dissatisfied, would you share why?

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* 12. Did Huntingtons Queensland help you to prepare, plan or apply for your NDIS package?

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* 13. If you are considering an NDIS package, which of these services are/would be relevant to you?

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* 14. If you are considering applying for an NDIS package, would you ask Huntingtons Queensland to assist you?

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* 15. What do you think are Huntingtons Queensland's most important services? (Please choose up to five)

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* 16. Which Huntingtons Queensland services - if any - should be discontinued? Why?

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* 17. What new services or programs would you like Huntingtons Queensland to offer?

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* 18. What services are either missing or inadequate for HD families living in Queensland?

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* 19. What do you see as Huntingtons Queensland's strengths?

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* 20. What do you think Huntingtons Queensland could do better?

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* 21. Do you have any other comments, questions or concerns?

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