Introduction

The Summer Training Course for Young Patients Advocates – Leadership Programme is an exciting and unique opportunity offering a tailored high-quality training to young patient advocates or representatives of young patient advocates who have the motivation to learn more about advocacy and maximise their leadership potentials in a real environment.

Our vision for the Training Course is to create a platform where young patient advocates would empower, inspire, and learn from each other on an annual basis. The previous two editions of the Training Course were focused on three topic areas: leadership, discrimination, and human rights from an advocacy perspective.

This year’s topic will be dedicated to investigating how patient advocacy is evolving and facing emerging challenges and opportunities while keeping a strong ethical approach. Today, patient involvement in healthcare systems and in the R&D medicines lifecycle provide tremendous opportunities to have patients’ voices heard and their input embedded in the design of services.

Young patients’ voices are increasingly heard by regulatory bodies such as EMA, industry, HTA bodies, and policy makers, to ensure that their perspective is not missed to inform the decision-making process. As usual, these opportunities raise questions around the representativeness of those bringing the patient perspective, their potential conflict of interest or risk of bias depending on the role patient advocates play in which context. EPF believes that in its evolution patient advocacy must build strong safeguards to avoid pitfalls and misperceptions. Transparency is acknowledged as an absolute precondition to advocacy, therefore it applies also when it comes to involving young patients either as individuals or as young patient communities in advocacy work. There is an identified need to keep building and nurturing a culture of ethical advocacy and trust to facilitate constructive interactions within and outside patient communities. Through the training course, EPF will raise awareness among the new generation of young patient advocates on current challenges, obstacles, opportunities and will share good practices for ethical patient advocacy in complex environments.

The Training Course will be held in Vienna, Austria from Sunday 7th July (evening) through Wednesday 10th July (afternoon).
Participants must be able to attend the entire Training Course programme. 

Applications will be accepted until midnight on 1 March 2019. After 1 March, no late applications will be accepted or considered! All accepted applicants will be notified by 30 March 2019 at the latest. 
 
If you have any additional questions or issues with your application, please contact EPF Secretariat members: Valentina Strammiello @ valentina.strammiello@eu-patient.eu and/or Lyudmil Ninov @ lyudmil.ninov@eu-patient.eu

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