Have your say on HD services

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* 1. Please tell us your age

Under 18

18-24

25-34

35-44

45-54

55-64

65-74

75+

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* 2. Please tell us where you live

Far North Queensland

North Queensland

North West Queensland

Central Queensland

Mackay Issac Whitsunday

Darling Downs South West

Wide Bay

Sunshine Coast

Gold Coast

Brisbane

Other (please specify)

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* 3. What is your connection to Huntingtons Queensland?

I have HD

I have a parent with HD

I am at risk of developing HD

I have tested gene positive

I have tested gene negative

I am a carer

I have/had a family member with HD

I am a service provider

I am a support worker

I am a health professional

I am a researcher

I have a friend who has HD

Other (please specify)

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* 4. What do you think is the purpose of Huntingtons Queensland?

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* 5. Please rate the importance of the following Huntingtons Queensland services

	Very important	Important	Unimportant	Don't know
One on one support	One on one support Very important	One on one support Important	One on one support Unimportant	One on one support Don't know
Family support	Family support Very important	Family support Important	Family support Unimportant	Family support Don't know
Supportive counselling	Supportive counselling Very important	Supportive counselling Important	Supportive counselling Unimportant	Supportive counselling Don't know
Welfare support (help with Centrelink, Medicare, NDIS, Aged Care packages)	Welfare support (help with Centrelink, Medicare, NDIS, Aged Care packages) Very important	Welfare support (help with Centrelink, Medicare, NDIS, Aged Care packages) Important	Welfare support (help with Centrelink, Medicare, NDIS, Aged Care packages) Unimportant	Welfare support (help with Centrelink, Medicare, NDIS, Aged Care packages) Don't know
Support at the RBWH's HD clinic	Support at the RBWH's HD clinic Very important	Support at the RBWH's HD clinic Important	Support at the RBWH's HD clinic Unimportant	Support at the RBWH's HD clinic Don't know
Support groups	Support groups Very important	Support groups Important	Support groups Unimportant	Support groups Don't know
Community events	Community events Very important	Community events Important	Community events Unimportant	Community events Don't know
Information services	Information services Very important	Information services Important	Information services Unimportant	Information services Don't know
Education for workers	Education for workers Very important	Education for workers Important	Education for workers Unimportant	Education for workers Don't know
Referral to Allied Health services	Referral to Allied Health services Very important	Referral to Allied Health services Important	Referral to Allied Health services Unimportant	Referral to Allied Health services Don't know
Advocacy on your behalf	Advocacy on your behalf Very important	Advocacy on your behalf Important	Advocacy on your behalf Unimportant	Advocacy on your behalf Don't know
Research updates	Research updates Very important	Research updates Important	Research updates Unimportant	Research updates Don't know
Social media	Social media Very important	Social media Important	Social media Unimportant	Social media Don't know
Website	Website Very important	Website Important	Website Unimportant	Website Don't know

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* 6. Please rate your level of satisfaction with Huntingtons Queensland's services. (If you have not used a particular service, please mark N/A)

	Very satisfied	Satisfied	Neutral	Dissatisfied	Very dissatisfied	Not applicable
One on one support	One on one support Very satisfied	One on one support Satisfied	One on one support Neutral	One on one support Dissatisfied	One on one support Very dissatisfied	One on one support Not applicable
Family support	Family support Very satisfied	Family support Satisfied	Family support Neutral	Family support Dissatisfied	Family support Very dissatisfied	Family support Not applicable
Supportive counselling	Supportive counselling Very satisfied	Supportive counselling Satisfied	Supportive counselling Neutral	Supportive counselling Dissatisfied	Supportive counselling Very dissatisfied	Supportive counselling Not applicable
Welfare support (Help with Centrelink, Medicare, NDIS, Aged Care packages)	Welfare support (Help with Centrelink, Medicare, NDIS, Aged Care packages) Very satisfied	Welfare support (Help with Centrelink, Medicare, NDIS, Aged Care packages) Satisfied	Welfare support (Help with Centrelink, Medicare, NDIS, Aged Care packages) Neutral	Welfare support (Help with Centrelink, Medicare, NDIS, Aged Care packages) Dissatisfied	Welfare support (Help with Centrelink, Medicare, NDIS, Aged Care packages) Very dissatisfied	Welfare support (Help with Centrelink, Medicare, NDIS, Aged Care packages) Not applicable
Support at the RBWH's HD clinic	Support at the RBWH's HD clinic Very satisfied	Support at the RBWH's HD clinic Satisfied	Support at the RBWH's HD clinic Neutral	Support at the RBWH's HD clinic Dissatisfied	Support at the RBWH's HD clinic Very dissatisfied	Support at the RBWH's HD clinic Not applicable
Support groups	Support groups Very satisfied	Support groups Satisfied	Support groups Neutral	Support groups Dissatisfied	Support groups Very dissatisfied	Support groups Not applicable
Community events	Community events Very satisfied	Community events Satisfied	Community events Neutral	Community events Dissatisfied	Community events Very dissatisfied	Community events Not applicable
Information services	Information services Very satisfied	Information services Satisfied	Information services Neutral	Information services Dissatisfied	Information services Very dissatisfied	Information services Not applicable
Education for workers	Education for workers Very satisfied	Education for workers Satisfied	Education for workers Neutral	Education for workers Dissatisfied	Education for workers Very dissatisfied	Education for workers Not applicable
Referral to Allied Health services	Referral to Allied Health services Very satisfied	Referral to Allied Health services Satisfied	Referral to Allied Health services Neutral	Referral to Allied Health services Dissatisfied	Referral to Allied Health services Very dissatisfied	Referral to Allied Health services Not applicable
Advocacy on your behalf	Advocacy on your behalf Very satisfied	Advocacy on your behalf Satisfied	Advocacy on your behalf Neutral	Advocacy on your behalf Dissatisfied	Advocacy on your behalf Very dissatisfied	Advocacy on your behalf Not applicable
Research updates	Research updates Very satisfied	Research updates Satisfied	Research updates Neutral	Research updates Dissatisfied	Research updates Very dissatisfied	Research updates Not applicable
Social media	Social media Very satisfied	Social media Satisfied	Social media Neutral	Social media Dissatisfied	Social media Very dissatisfied	Social media Not applicable
Website	Website Very satisfied	Website Satisfied	Website Neutral	Website Dissatisfied	Website Very dissatisfied	Website Not applicable

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* 7. Is there anything you would like to add about a specific service?

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* 8. Should Huntingtons Queensland consider delivering services under NDIS?

Yes

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* 9. If Huntingtons Queensland was to delivery support services under NDIS, which of these services would be of interest to you? Please tick any/all that would be of interest.

Support coordination

Specialised support coordination

Training for carers

Training for support workers

Occupational therapy

Other (please specify)

None of the above

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* 10. What do you think are Huntingtons Queensland's most important services? (Please choose up to five)

One on one support

Family support

Non-clinical counselling

Welfare support (Help with Centrelink, Medicare, NDIS, Aged Care packages)

Support at the RBWH's HD clinic

Accessing the NDIS

Support groups

Community events

Information services

Education for workers

Referral to Allied Health Services

Advocacy on your behalf

Research updates

Social media

Website

Other (please specify)

Have your say on HD services - 2022

Huntingtons Queensland survey

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* 1. Please tell us your age

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* 2. Please tell us where you live

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* 3. What is your connection to Huntingtons Queensland?

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* 4. What do you think is the purpose of Huntingtons Queensland?

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* 5. Please rate the importance of the following Huntingtons Queensland services

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* 6. Please rate your level of satisfaction with Huntingtons Queensland's services. (If you have not used a particular service, please mark N/A)

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* 7. Is there anything you would like to add about a specific service?

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* 8. Should Huntingtons Queensland consider delivering services under NDIS?

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* 9. If Huntingtons Queensland was to delivery support services under NDIS, which of these services would be of interest to you? Please tick any/all that would be of interest.

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* 10. What do you think are Huntingtons Queensland's most important services? (Please choose up to five)

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* 11. What new services or programs would you like Huntingtons Queensland to offer?

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* 12. What services are either missing or inadequate for HD families living in Queensland?

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* 13. What do you see as Huntingtons Queensland's strengths?

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* 14. What do you think Huntingtons Queensland could do better?

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* 15. Do you have any other comments, questions or concerns?