2019 AAMDSIF Patient Survey - PAGE 1

Thank you for participating in the 2019 Aplastic Anemia & MDS International Foundation patient survey. Your responses will help us provide you with better patient, family and caregiver education. 

* Questions marked with an asterisk are required. 

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* 1. * Please tell us a little bit about yourself. We're asking all survey takers to let us know what country you live in and your postal/ZIP code. (This helps us select locations for conferences, workshops and events.)

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* 2. OPTIONAL:  We would like to make sure that we have your current contact information in our database. If you would like to be included in notices about conferences, webinars, support groups, clinical trials, new research findings and volunteer opportunities, please complete this section.

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* 3. Are you a patient, family member, friend or caregiver of a patient or a health professional? Please select one.

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* 4. What disease(s) do you, your family member, friend, or patient have? (please select all that apply)

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* 5. How long ago were you (or your family member/friend/patient) diagnosed with your disease(s)?

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* 6. What health care professional do you interact most with about your disease(s)?

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* 7. How would you rate your health care provider's knowledge about your disease?

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* 8. Are you satisfied with the information your health care provider gave you about your disease(s)?

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* 9. In addition to disease and treatment options, has your health care professional(s) talked to you about any of the following topics? (Select all that apply.)

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* 10. Where do you find information about rare blood cancers and bone marrow failure diseases? (Select all that apply.)

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