Exit this survey Genetcs Survey of Healthcare Providers 1. Question Title * 1. Based on your current knowledge and professional experience, what do you see as the top three priorities for public health genetics planning in Maine (select only 3) Collection of population-based data about genetic conditions (e.g. prevalence rates for birth defects) Statewide availability of genetic services (i.e. testing, evaluation, counseling) Affordability/financial coverage of genetic services (i.e. insurance reimbursement) Quality of services/resources Coordination of genetic activities & service delivery across local and state agencies Cultural sensitivity of genetic services/educational resources (e.g. Multilanguage patient literature) Dissemination of scientific genetic information regarding genetic testing, management, & health promotion Healthcare provider education General public education Genetic privacy & discrimination Ethical use of genetic technology Evaluation of the newborn screening system effectiveness Question Title * 2. How have you received previous genetics training/education in the past? Please indicate all that apply I have received no training/education about genetics Course work during medical/nursing/physician assistant school Rotation in genetics during my internship/residency Fellowship training Post-training course in genetics Session/lectures at medical/nursing/physician assistant conference Grand rounds presentations Journal articles Consultation with genetic experts Online Genetics/genomics, continuing education (i.e. webiners, web courses) Question Title * 3. What is your preferred way to receive genetics traiing & education now? Please indicate all that apply Grand round presentations Session/lectures at medical/nursing/physician assistant conference Presentations by genetics professionals in your area Web-based educational programs/materials On-line genetics/genomics continuing education courses Question Title * 4. What is your primary area of medical/nursing speciality? Choose one Family Practice Pediatrics Ob/GYN Oncology Orthopedics Endocrinology Psychiatry Adolescent Medicine Genetics Neonatology Public Health Other Question Title * 5. In what type of setting do you primarily practice? Choose one Tertiary medical center Community based hospital or clinic Private/Group Practice Health Maintenance Organization Military hospital/clinic Public Health Agency Federally Qualified Health Centers Other (please specify) Question Title * 6. How confident are you with your ability to perform the following activities: Not at all confident Not so confident Somewhat Confident Extremely Confident No comment Identify the genetic aspect of a patient's conditions Identify the genetic aspect of a patient's conditions Not at all confident Identify the genetic aspect of a patient's conditions Not so confident Identify the genetic aspect of a patient's conditions Somewhat Confident Identify the genetic aspect of a patient's conditions Extremely Confident Identify the genetic aspect of a patient's conditions No comment Take a three generation family pedigree Take a three generation family pedigree Not at all confident Take a three generation family pedigree Not so confident Take a three generation family pedigree Somewhat Confident Take a three generation family pedigree Extremely Confident Take a three generation family pedigree No comment Interpret family history's contribution to genetic risk Interpret family history's contribution to genetic risk Not at all confident Interpret family history's contribution to genetic risk Not so confident Interpret family history's contribution to genetic risk Somewhat Confident Interpret family history's contribution to genetic risk Extremely Confident Interpret family history's contribution to genetic risk No comment Order the appropriate genetic test Order the appropriate genetic test Not at all confident Order the appropriate genetic test Not so confident Order the appropriate genetic test Somewhat Confident Order the appropriate genetic test Extremely Confident Order the appropriate genetic test No comment Interpret genetic test results Interpret genetic test results Not at all confident Interpret genetic test results Not so confident Interpret genetic test results Somewhat Confident Interpret genetic test results Extremely Confident Interpret genetic test results No comment Question Title * 7. Of the patients that you personally provide care for, about what percentage are diagnosed with or do you believe may have a medical condition that has an inherited or genetic basis? None <1% 1-10% 11-25% >50% Not Sure Question Title * 8. Have you ever referred a patient to a genetics service provider (clinical geneticist or genetic counselor) for any type of clinical genetic service such as evaluation, counseling, genetic testing, or treatment? Yes No Question Title * 9. If Yes to question 8 for the most part, have you been satisfied with the genetic service your patient received? Yes No Not sure Question Title * 10. If no to question 8, do you know of another clinical genetics service/resource near you? Yes No Not sure Question Title * 11. Have any of your patients had problems with insurance reinbursement for clnical genetics services (evaluation, counseling or genetic testing or treatment)? Yes No Not sure Question Title * 12. What genetic services do you want for your patients that are not readily available? Check all that apply Nothing, we have what we need Faster access to genetic counselors for genetic couseling appointments Faster access for geneticist evaluation Closer availability of genetic services Better healthcare coverage for genetic services Educational materials in multiple languages Interpreters that are trained to discuss genetics Consumer advocates who are trained to discuss genetics Other (please specify) Question Title * 13. Do you have any other comments or questions? Done