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1. How long have you had CFS?
 answered question10
 
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0
 Response
Percent
Response
Count
< 1 year 0.0%0
1-5 years
50.0%5
5-10 years
30.0%3
10-20 years
20.0%2
> 20 years 0.0%0

2. How long ago were you diagnosed with CFS by a CFS specialist?
 answered question10
 
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 Response
Percent
Response
Count
0-5 years ago
80.0%8
5-10 years ago
20.0%2
10-20 years ago 0.0%0
>20 years ago 0.0%0
Not sure 0.0%0
I was never diagnosed by a CFS specialist 0.0%0

3. What is your current activity/disability level? Please choose one that best describes your condition.
 answered question10
 
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 Response
Percent
Response
Count
100 Fully recovered. Normal activity level with no symptoms. 0.0%0
90 Normal activity level with mild symptoms at times. 0.0%0
80 Near normal activity level with some symptoms. 0.0%0
70 Able to work full time but with difficulty. Mostly mild symptoms.
10.0%1
60 Able to do about 6-7 hours of work a day. Mostly mild to moderate symptoms.
10.0%1
50 Able to do about 4-5 hours a day of work or similar activity at home. Daily rests required. Symptoms mostly moderate.
20.0%2
40 Able to leave house every day. Moderate symptoms on average. Able to do about 3-4 hours a day of work or activity like housework, shopping, using computer. 0.0%0
30 Able to leave house several times a week. Moderate to severe symptoms much of the time. Able to do about 2 hours a day of work at home or activity like housework, shopping, using computer.
20.0%2
20 Able to leave house once or twice a week. Moderate to severe symptoms. Able to concentrate for 1 hour or less per day.
20.0%2
10 Mostly bedridden. Severe symptoms.
20.0%2
0 Bedridden constantly. Unable to care for self. 0.0%0

4. What was your activity level just before starting famvir (famciclovir)?
 answered question10
 
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 Response
Percent
Response
Count
100 Fully recovered. Normal activity level with no symptoms.
10.0%1
90 Normal activity level with mild symptoms at times. 0.0%0
80 Near normal activity level with some symptoms. 0.0%0
70 Able to work full time but with difficulty. Mostly mild symptoms. 0.0%0
60 Able to do about 6-7 hours of work a day. Mostly mild to moderate symptoms.
20.0%2
50 Able to do about 4-5 hours a day of work or similar activity at home. Daily rests required. Symptoms mostly moderate. 0.0%0
40 Able to leave house every day. Moderate symptoms on average. Able to do about 3-4 hours a day of work or activity like housework, shopping, using computer.
20.0%2
30 Able to leave house several times a week. Moderate to severe symptoms much of the time. Able to do about 2 hours a day of work at home or activity like housework, shopping, using computer. 0.0%0
20 Able to leave house once or twice a week. Moderate to severe symptoms. Able to concentrate for 1 hour or less per day.
20.0%2
10 Mostly bedridden. Severe symptoms.
20.0%2
0 Bedridden constantly. Unable to care for self.
10.0%1

5. How long have you continuously taken famvir (famciclovir)?
 answered question9
 
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1
 Response
Percent
Response
Count
< 1 month
11.1%1
1-2 months
11.1%1
2-3 months
11.1%1
3-6 months
22.2%2
6-12 months
11.1%1
> 12 months
33.3%3

6. What dose did you take each time you took famvir?
 answered question10
 
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 Response
Percent
Response
Count
125 mg 0.0%0
250 mg
20.0%2
500 mg
20.0%2
1 g
30.0%3
> 1 g
30.0%3
Not sure 0.0%0

7. How often do you take this dose?
 answered question10
 
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0
 Response
Percent
Response
Count
Once a day 0.0%0
Twice a day
30.0%3
3X per day
20.0%2
> 3X per day
50.0%5
Not sure 0.0%0

8. Did you take famvir at any other doses or frequency?
 answered question5
 
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5
 Response
Count
[ShowReplies]5

9. Do you feel better and/or are able to do more since taking famvir?
 answered question10
 
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0
 Response
Percent
Response
Count
Yes
40.0%4
No
30.0%3
Not sure
30.0%3

10. How much improvement have you seen?
 answered question9
 
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1
 Response
Percent
Response
Count
None
33.3%3
A little maybe
33.3%3
A small amount but I'm sure I have improved
22.2%2
A moderate amount
11.1%1
A large amount 0.0%0

11. Why did your doctor prescribe this drug?
 answered question10
 
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0
 Response
Percent
Response
Count
Epstein Barr virus (EBV)
80.0%8
HHV6
70.0%7
Cytomegalovirus (CMV)
40.0%4
Herpes virus
40.0%4
Other 0.0%0
Not sure 0.0%0

12. Do you have the initial lab results from your doctor concerning infection with or re-activation of one or more of these viruses? If no, please go to question 17.
 answered question10
 
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0
 Response
Percent
Response
Count
Yes
90.0%9
No
10.0%1

13. What were the initial lab results? Please be as specific as possible with test numbers if you have them.
 answered question8
 
skipped question
2
 Response
Count
[ShowReplies]8

14. Were you retested for this virus or viruses after taking famvir?
 answered question9
 
skipped question
1
 Response
Percent
Response
Count
Yes
55.6%5
No
44.4%4
Not sure 0.0%0

15. How long after starting famvir were you retested for virus infection or re-activation?
 answered question7
 
skipped question
3
 Response
Percent
Response
Count
< 3 months
14.3%1
3-6 months
57.1%4
6-12 months 0.0%0
>12 months 0.0%0
Not sure
28.6%2

16. What was the result of re-testing? Please be as specific as possible with test numbers if you have them.
 answered question5
 
skipped question
5
 Response
Count
[ShowReplies]5

17. If you were re-tested for these viruses more than once, please enter additional results here.
 answered question3
 
skipped question
7
 Response
Count
[ShowReplies]3

18. Did you experience lasting side effects taking this drug?
 answered question9
 
skipped question
1
 Response
Percent
Response
Count
Yes
55.6%5
No
44.4%4
Not sure 0.0%0

19. What side effects did you experience?
 answered question8
 
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2
 Response
Percent
Response
Count
None
37.5%3
Nausea
37.5%3
Vomiting
12.5%1
Insomnia
25.0%2
Headache
37.5%3
Other
50.0%4

20. If you entered other for the last question, what was the side effect?
 answered question5
 
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5
 Response
Count
[ShowReplies]5

21. If you had side effects, what was their severity?
 answered question8
 
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2
 Response
Percent
Response
Count
I did not experience side effects
25.0%2
Mild
12.5%1
Mild to moderate
12.5%1
Moderate
25.0%2
Moderate to severe
12.5%1
Severe
12.5%1

22. Thanks for taking this survey. The results will be posted on this website. Please enter any additional comments here.
 answered question5
 
skipped question
5
 Response
Count
[ShowReplies]5

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