Attitudes towards end of life issues among people with motor neurone disease: a survey |
1. Introduction
This survey aims to evaluate the attitudes of people with motor neurone disease (MND/ALS) about end of life issues such advance decisions, assisted suicide and euthanasia, with additional questions about low mood and social circumstances. Such issues have recently received considerable media attention. Lord Joffe’s Assisted Dying for the Terminally Ill Bill was defeated on its second reading in the House of Lords on 12 May 2006 by a margin of 148 votes to 100.
This survey has been designed by Barts and The London Hospital NHS Trust. It can be answered by anyone with motor neurone disease or by relatives/carers on behalf of people with motor neurone disease.
It is a quick, anonymous online survey. You do not have to answer all of the questions and you can stop at any time (see top right).
The purpose of this survey is to provide evidence that will inform the public debate and lead to better patient education and management in the future. We would very much appreciate your contribution!
Disclaimer
Although care has been taken in preparing this survey, Barts and The London School of Medicine and Dentistry cannot be held responsible for any errors or omissions in the survey and accepts no liability whatsoever for any consequences arising from completing this survey.
The information collected in relation to this survey will only be used for the purposes stated. No third party will be given access to this information. The authors reserve the right to make changes to or take down this survey, or remove or alter any content at any time without notice.
Professor Gavin Giovannoni, Dr Aleksandar Raduvnoic and Dr Morag Brothwell welcome comments and suggestions about this survey, which can be sent to them using the feedback field at the end of this survey.
Anyone wishing to contact them directly can do so using their contact details below:
Dr Aleksandar Radunovic
Department of Neurology
The Royal London Hospital
Whitechapel Road
Whitechapel
London
E1 1BB
Gavin Giovannoni and Morag Brothwell,
Neuroscience & Trauma Centre,
Blizard Institute of Cell and Molecular Science,
4 Newark Street,
Whitechapel,
LONDON
E1 2AT
Tel: +44 20 7377 7472 +44 20 7377 7472 +44 20 7377 7472
aleksandar.radunovic@bartsandthelondon.nhs.uk or
g.giovannoni@qmul.ac.uk or
moragbrothwell@hotmail.com
This survey has been designed by Barts and The London Hospital NHS Trust. It can be answered by anyone with motor neurone disease or by relatives/carers on behalf of people with motor neurone disease.
It is a quick, anonymous online survey. You do not have to answer all of the questions and you can stop at any time (see top right).
The purpose of this survey is to provide evidence that will inform the public debate and lead to better patient education and management in the future. We would very much appreciate your contribution!
Disclaimer
Although care has been taken in preparing this survey, Barts and The London School of Medicine and Dentistry cannot be held responsible for any errors or omissions in the survey and accepts no liability whatsoever for any consequences arising from completing this survey.
The information collected in relation to this survey will only be used for the purposes stated. No third party will be given access to this information. The authors reserve the right to make changes to or take down this survey, or remove or alter any content at any time without notice.
Professor Gavin Giovannoni, Dr Aleksandar Raduvnoic and Dr Morag Brothwell welcome comments and suggestions about this survey, which can be sent to them using the feedback field at the end of this survey.
Anyone wishing to contact them directly can do so using their contact details below:
Dr Aleksandar Radunovic
Department of Neurology
The Royal London Hospital
Whitechapel Road
Whitechapel
London
E1 1BB
Gavin Giovannoni and Morag Brothwell,
Neuroscience & Trauma Centre,
Blizard Institute of Cell and Molecular Science,
4 Newark Street,
Whitechapel,
LONDON
E1 2AT
Tel: +44 20 7377 7472 +44 20 7377 7472 +44 20 7377 7472
aleksandar.radunovic@bartsandthelondon.nhs.uk or
g.giovannoni@qmul.ac.uk or
moragbrothwell@hotmail.com