Research Study Title: Epilepsy, Separation-Individuation, and Self-Management: Their Relationships
Principal Investigator: Channing Harris, M.A. (firstname.lastname@example.org; 805-364-2861)
Faculty Advisor: Joan B. Read, Ph.D. (email@example.com)
What are some general things you should know about research studies? You are being asked to participate in a research study entitled, Epilepsy, Separation-Individuation, and Self-Management: Their Relationships, which is being conducted by Channing Harris, a doctoral candidate in the Clinical Psychology program at Fielding Graduate University, Santa Barbara, CA. Your participation is completely voluntary. You may refuse to join, or you may withdraw your consent to be in the study, for any reason. Details about this study are discussed below. It is important that you understand this information so that you can make an informed choice about participating in this research study.
What is the purpose of this study? The purpose of the study is to gain a better understanding of young adults with epilepsy, how living with epilepsy may influence psychological health and development, (including the relationships between young adults with epilepsy and their parents, young adults’ perceptions regarding parental overprotectiveness, and the extent to which these aspects influence psychological well-being and the management of epilepsy), and the ways in which self-management may be affected. It is our hope that this information will help to eventually inform evidence-based treatment for people with epilepsy.
How many people will take part in this study? If you decide to be in this study, you will be one of approximately 300 people in this research study.
What will happen if you take part in the study? Your part in this study will last approximately 20-25 minutes. During this study, you will complete a series of online questionnaires. These questionnaires will ask you to provide ratings on several different scales that assess your experiences with epilepsy, your parents, your peers, psychological symptoms, and epilepsy-related self-management. You will also be asked to provide demographic information (i.e., age, race, etc.) and epilepsy information (i.e., type of epilepsy, epilepsy medications you take, etc.).
What are the possible benefits from being in this study? Though this research will benefit society by providing knowledge, it will more directly benefit the field of clinical psychology (and other mental health specialty programs) by improving the understanding of people with epilepsy, and in turn, the quality of mental health services provided people with epilepsy. You may not benefit personally from being in this research study.
What are the possible risks or discomforts involved from being in this study? We anticipate few risks in this study. As a result of your participation in this research, you may develop a greater personal awareness of your life experiences and behaviors, which could make you feel uncomfortable. However, the risks to you are considered minimal. There is a possible chance you may experience some emotional discomfort during your participation. If you experience discomfort during your participation, or for any other reason, you may quit answering questions at any time.