Care Coordination for Children with Special Health Care Needs Survey

This short survey explores care coordination strategies and practices for children with special health care needs (CSHCN). For the purposes of this survey we are defining care coordination as a:

"...family-centered, assessment-driven, team-based activity guided by an individualized care plan designed to meet the needs of children and youth while enhancing the care-giving capabilities of families." Antonelli, McAllister, and Popp

There are seven questions. It should take between 3-5 minutes to complete.

Question Title

* 1. What is your primary role concerning CSHCN?

Family

Advocate

Pediatrician

Health service provider

Health policy researcher

Health insurance company employee

Employer/insurance purchaser

County or state agency employee

Policymaker/legislator

Nonprofit agency employee

Other (please specify)

Question Title

* 2. Which TWO strategies would most improve care coordination in your community?

Common referral forms

Training for families to advocate for improved care coordination

State standards for care coordination

A single care coordinator for each child

Care plan for each child

Common assessment forms and procedures

Educating medical practices about care coordination

Interagency in-person case reviews

Certification of care coordinators

Other (please specify)

Question Title

* 3. What are the TWO biggest barriers to coordinating care for CSHCN?

Lack of standards for care coordination

Fragmented system of care

Lack of staff trained to coordinate care

Lack of computer-based systems to coordinate care

Inadequate communication between health care providers

Misunderstandings about expectations for coordinating care

Inadequate payment for care coordination

Other (please specify)

Question Title

* 4. Aside from improving patient outcomes, what are the TWO most important reasons for coordinating care for CSHCN?

Increased quality of care

Reduction in health care costs

Reduction of the burden on families

Fewer emergency department visits

Increased family satisfaction

Fewer hospital readmissions

Reduction in caregiver work days lost

Other (please specify)

Question Title

* 5. In your opinion, who should be primarily responsible for assisting the family in coordinating care for CSHCN?

Pediatric specialists

The California Children's Services (CCS) program

The health care plan/insurer

Primary care practices

Community service agencies

The hospital

Other (please specify)

Question Title

* 6. Are you aware of an effective care coordination program for CSHCN in California? If so, please identify and describe the program:

Question Title

* 7. Is there anything else that is important to understand about care coordination for CSHCN?

Thank you for your participation!