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* 1. What is your gender?

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* 2. What is your age (in years)?

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* 3. What research project were you involved in?

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* 4. How will this research help people with TS?

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* 5. What aspects of the research did you enjoy?

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* 6. Did you feel there were the benefits to you directly of being involved in research and if yes what were they? (For example learning more about TS)

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* 7. Why did you get involved in research?

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* 8. Did you feel the research was explained properly to you – the reason for the research, any risks, that you could ask questions or leave the study if you no longer wanted to participate?

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* 9. Please tell us about any aspects of your participation in the research that you believe could be improved?

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* 10. Would you encourage other people to be research participants and if so why?

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* 11. What advice might you give someone who was thinking about being a research participant?

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* 12. Would you consider being involved in research in the future?

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* 13. If you would like to be contacted in the future about being a research participant again please leave some contact details below

If you have any questions about this survey, being involved in research or questions regarding research itself then please get in touch with Seonaid Anderson, Research manager at Tourettes Action Seonaid@tourettes-action.org.uk

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