Please tell us how we can serve you better. What would you like us to provide that would help you understand VHL and minimize the impact on your life.

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* 1. Please let us know your name:

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* 2. Please give us your email address:

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* 3. Which online service from VHLFA do you use the most?

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* 4. Which online resource from VHLFA is your second most used?

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* 5. Would you be interested in educational webinars or teleconferences from VHLFA?

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* 6. Please rank the webinar / teleconference / newsletter topics in order of interest. (Select a number and the list will reorder to match your preference.)

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* 7. Please let us know the body part for which you are most interested in learning more about the effects and treatments:

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* 8. Please let us know any other webinar / teleconference / newsletter topic of interest.

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* 9. How should VHLFA encourage teens to join our Facebook group?

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* 10. What should we name our patient-driven research database that will launch this fall? We are collecting your medical history and experiences with VHL, HLRCC, and BHD to make it available for researchers around the world.

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