Steps for Living Online Survey

Question Title

* 1. We would like to know a little bit more about you - which of the following best describes you?

An individual with a bleeding disorder

A parent of a child with a bleeding disorder

A healthcare provider (e.g. nurse or physician)

A social worker, counselor, or mental health provider

An educator or teacher

Chapter staff

Other (please specify)

Question Title

* 2. Which Steps for Living section do you use most frequently?

First Step

Next Step

Step Up

Step Out

PDF Resources

Video Resources

Question Title

* 3. Visiting Steps for Living could benefit my: (check all that apply)

Family

Friends

Teachers and school staff

Coworkers

Healthcare providers outside of my HTC

Other (please specify)

Question Title

* 4. Steps for Living has made me more knowledgeable about (check all that apply)

Bleeding disorder basics

Bleeding disorder management

Healthy lifestyle choices

Planning for the future

How to involve my child in his/her treatment

Question Title

* 5. How would you rate the following aspects of the Steps for Living website?

	Poor	Below Average	Average	Above Average	Excellent
General Appearance	General Appearance Poor	General Appearance Below Average	General Appearance Average	General Appearance Above Average	General Appearance Excellent
Ease of Use/Navigation	Ease of Use/Navigation Poor	Ease of Use/Navigation Below Average	Ease of Use/Navigation Average	Ease of Use/Navigation Above Average	Ease of Use/Navigation Excellent
Relevance of Information	Relevance of Information Poor	Relevance of Information Below Average	Relevance of Information Average	Relevance of Information Above Average	Relevance of Information Excellent
Clarity of Information	Clarity of Information Poor	Clarity of Information Below Average	Clarity of Information Average	Clarity of Information Above Average	Clarity of Information Excellent
Overall Satisfaction	Overall Satisfaction Poor	Overall Satisfaction Below Average	Overall Satisfaction Average	Overall Satisfaction Above Average	Overall Satisfaction Excellent

Question Title

* 6. I plan to incorporate information I learned from visiting Steps for Living today in the management of my child's or my own bleeding disorder.

Yes

Not sure

N/A - I do not have a bleeding disorder

Question Title

* 7. As a result of visiting the Steps for Living website, I feel more confident in my ability to manage my or my child's bleeding disorder.

Yes

Not sure

N/A - I do not have a bleeding disorder

	Strongly Disagree	Disagree	Neutral	Agree	Strongly Agree
The importance of exercise for people with bleeding disorders	The importance of exercise for people with bleeding disorders Strongly Disagree	The importance of exercise for people with bleeding disorders Disagree	The importance of exercise for people with bleeding disorders Neutral	The importance of exercise for people with bleeding disorders Agree	The importance of exercise for people with bleeding disorders Strongly Agree
Why maintaining a healthy weight is important for people with bleeding disorders	Why maintaining a healthy weight is important for people with bleeding disorders Strongly Disagree	Why maintaining a healthy weight is important for people with bleeding disorders Disagree	Why maintaining a healthy weight is important for people with bleeding disorders Neutral	Why maintaining a healthy weight is important for people with bleeding disorders Agree	Why maintaining a healthy weight is important for people with bleeding disorders Strongly Agree
How to identify safer sports and/or to adapt activities to increase safety	How to identify safer sports and/or to adapt activities to increase safety Strongly Disagree	How to identify safer sports and/or to adapt activities to increase safety Disagree	How to identify safer sports and/or to adapt activities to increase safety Neutral	How to identify safer sports and/or to adapt activities to increase safety Agree	How to identify safer sports and/or to adapt activities to increase safety Strongly Agree
The risks and benefits of my child disclosing his/her bleeding disorder to others	The risks and benefits of my child disclosing his/her bleeding disorder to others Strongly Disagree	The risks and benefits of my child disclosing his/her bleeding disorder to others Disagree	The risks and benefits of my child disclosing his/her bleeding disorder to others Neutral	The risks and benefits of my child disclosing his/her bleeding disorder to others Agree	The risks and benefits of my child disclosing his/her bleeding disorder to others Strongly Agree
My role at my child’s HTC visits	My role at my child’s HTC visits Strongly Disagree	My role at my child’s HTC visits Disagree	My role at my child’s HTC visits Neutral	My role at my child’s HTC visits Agree	My role at my child’s HTC visits Strongly Agree

Strongly Disagree

Disagree

Neutral

Agree

Strongly Agree

The importance of exercise for people with bleeding disorders

The importance of exercise for people with bleeding disorders Strongly Disagree

The importance of exercise for people with bleeding disorders Disagree

The importance of exercise for people with bleeding disorders Neutral

The importance of exercise for people with bleeding disorders Agree

The importance of exercise for people with bleeding disorders Strongly Agree

Why maintaining a healthy weight is important for people with bleeding disorders

Why maintaining a healthy weight is important for people with bleeding disorders Strongly Disagree

Why maintaining a healthy weight is important for people with bleeding disorders Disagree

Why maintaining a healthy weight is important for people with bleeding disorders Neutral

Why maintaining a healthy weight is important for people with bleeding disorders Agree

Why maintaining a healthy weight is important for people with bleeding disorders Strongly Agree

How to identify safer sports and/or to adapt activities to increase safety

How to identify safer sports and/or to adapt activities to increase safety Strongly Disagree

How to identify safer sports and/or to adapt activities to increase safety Disagree

How to identify safer sports and/or to adapt activities to increase safety Neutral

How to identify safer sports and/or to adapt activities to increase safety Agree

How to identify safer sports and/or to adapt activities to increase safety Strongly Agree

The risks and benefits of my child disclosing his/her bleeding disorder to others

The risks and benefits of my child disclosing his/her bleeding disorder to others Strongly Disagree

The risks and benefits of my child disclosing his/her bleeding disorder to others Disagree

The risks and benefits of my child disclosing his/her bleeding disorder to others Neutral

The risks and benefits of my child disclosing his/her bleeding disorder to others Agree

The risks and benefits of my child disclosing his/her bleeding disorder to others Strongly Agree

My role at my child’s HTC visits

My role at my child’s HTC visits Strongly Disagree

My role at my child’s HTC visits Disagree

My role at my child’s HTC visits Neutral

My role at my child’s HTC visits Agree

My role at my child’s HTC visits Strongly Agree

Steps for Living Online Survey

Question Title

* 1. We would like to know a little bit more about you - which of the following best describes you?

Question Title

* 2. Which Steps for Living section do you use most frequently?

Question Title

* 3. Visiting Steps for Living could benefit my: (check all that apply)

Question Title

* 4. Steps for Living has made me more knowledgeable about (check all that apply)

Question Title

* 5. How would you rate the following aspects of the Steps for Living website?

Question Title

* 6. I plan to incorporate information I learned from visiting Steps for Living today in the management of my child's or my own bleeding disorder.

Question Title

* 7. As a result of visiting the Steps for Living website, I feel more confident in my ability to manage my or my child's bleeding disorder.

Question Title

* 8. As a result of visiting Steps for Living, please rate your understanding of the following aspects of your child’s care:

Question Title

* 9. Tell us more about how you use Steps for Living!