Tremor Question Title * 1. This survey that has been written by a team of designers, engineers and medics currently based at Imperial College. They are working on prototype of a wearable device designed to help people with Parkinson’s, particularly those that experience tremor. It monitors the condition and stabilises the hands accordingly. The team firmly believe this product could really help people continue to do the things that matter to them. The results of this survey will be used to refine their understanding of Parkinson’s disease and of the needs of people that might benefit from the device. They will also be running focus groups in collaboration with Parkinson’s UK in June to gather direct user feedback and critiques on this product. If you are interested in getting involved in this project, please reach out to us at notremor@ic.ac.uk! Question Title * 2. What is your age? Less than 35 35-39 40-44 45-49 50-54 55-59 60-64 65-69 70-74 75-79 Older than 80 Question Title * 3. Are you male or female? Male Female Question Title * 4. At what age were you diagnosed with Parkinson's? Less than 18 18-24 25-34 35-44 45-54 55-64 65-74 75-84 Older than 85 Question Title * 5. How long have you had Parkinson's ? Less than 5 years 5-10 years 11-15 years 16-20 years More than 20 years Question Title * 6. What do you consider to be your primary Parkinson's symptom (or side effect) - What aspect of your Parkinson's do you find the most bothersome? Tremor Stiffness Balance Muscle pain Back pain Problems with fine movement Dyskinesia Communication Sleep Digestion Hallucinations Thinking, organising, mood Behaviour change Anxiety Energy Urinary problems Other (please specify) Question Title * 7. What is/are the biggest challenges you face with your Parkinson's? Getting started in the mornings Mobility Fine movement (dressing, making tea, writing ect) Cognition: thinking, organising, mood Social Other (please specify) Question Title * 8. Are you currently being treated for Parkinson's? Yes No Question Title * 9. If yes, which of the following treatments do you use and which do you find beneficial (choose one or more)? Speech and language therapy Physiotherapy Medication Exercise routine Diet Other (please specify) Question Title * 10. Do you find it difficult adhering to your treatment ? Yes No If yes, please explain why? Question Title * 11. On a scale of 1-10 with 1 being coping very well, how would you describe your ability to cope with Parkinson's? 1 2 3 4 5 6 7 8 9 10 Question Title * 12. On a scale of 1 -10 with 10 being the most severe, how severe would you say your Parkinson's is? 1 2 3 4 5 6 7 8 9 10 Question Title * 13. Do you need support at home? Yes No Question Title * 14. If yes, how frequently do you need support at home? 1-3 hours a day 3-6 hours 7-9 hours Question Title * 15. Are you able to track changes in your Parkinson's? Yes No Question Title * 16. Would you want to be able to track changes in your Parkinson's over time? Yes No Question Title * 17. On average, how long is your medication effective every day? Never Less than 25% 25-50% 50-75% 75-100% All day Question Title * 18. When your treatment is fully efficient, how well do you move? Normally for my age Can do anything but slower Can do anything but with difficulty Need some assistance for some things Need assistance with most things Question Title * 19. Do your tremors cause you pain or discomfort, especially at the end of the day? Yes No Question Title * 20. Do hand tremors prevent you from sleeping well at night? Yes No Question Title * 21. How often is that? Never Less than 25% 25-50% 50 - 75% 75-100% Always Done