Informed Consent Form for Deaf Autism Research Project (Non-ASD)

 
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Introduction

Please read this form carefully. The purpose of this form is to provide you with important information about taking part in a research study. This form may contain words that you do not understand. Please ask the study staff to explain any words that you do not understand.

If you have any questions about the research or any portion of this form, please ask us. Taking part in this research study is up to you. If you decide to take part in this research study we will ask you to digitally sign this form. We will give you a copy of the signed form.

The person in charge of this study is Aaron Shield. Aaron Shield can be reached at ashield@bu.edu. We will refer to this person as the “researcher” throughout this form.

Why is this study being done?

The purpose of this study is to understand how deaf children with and without autism use sign language, and to identify areas of sign language that are particularly difficult for deaf children on the autism spectrum. This research could lead to improved diagnosis of autism in deaf children, as well as the development of improved educational and linguistic interventions.

We are asking you to take part in this study because you are the Deaf parent or CODA parent of a deaf childbetween the ages of 3 and 13.

About 65 of subjects will take part in this research study at Boston University.

The National Institute on Deafness and Other Communication Disorders (NIDCD, one of the National Institutes of Health) is paying for this research to be done.

Please go on to the next page.
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