Thank you for your time. Carers' Resource is gathering this information and your answers will be used by the Council for Disabled Children when they are deciding how best to support parents of disabled children through the changes in the SEND system using £30 million of government money.

Question Title

* 1. What is your age?

Question Title

* 2. What is your ethnicity?

Question Title

* 3. What is the age of your child who has additional needs?
If you have more than one child with additional needs please tick all that apply

Question Title

* 4. What is your child's condition? Please tick all that apply

Question Title

* 5. Where in North Yorkshire do you live?

First we will ask about your experience with the Education system. If your child is too young for this to be relevant please skip to question 12

Question Title

* 6. Does your child (or children) have a statement of special educational needs?
(Or a Section 139A Learning Difficulty Assessment, LDA, if post 16?). Tick all that apply

Question Title

* 7. If you have ever applied for a statement, how did you find the process?

Question Title

* 8. Who was your main support when going through the statementing process or during other difficult times in the education system?

Question Title

* 9. How easy have you found it to get information about your rights and those of your child in the education system?

Question Title

* 10. Have you ever felt your child's school/college/employer was being unsupportive to you as a family?

Question Title

* 11. Is there anything else you want to tell us about your experience of the education system for your child/children?

Now we will ask about your experience in the Health system

Question Title

* 12. Does your child have a diagnosis from a health professional?

Question Title

* 13. If you have ever tried to get a diagnosis, how did you find the process?

Question Title

* 14. Who was your main support when going through the diagnosis process or during other difficult times in the health system?

Question Title

* 15. Have you been given good information about:
(tick all that apply if you have more than one child)

  no information poor information good information excellent information
The medical condition itself
Sources of emotional and/or peer support
Benefits and financial help available

Question Title

* 16. If you feel you were well informed, who gave you good information (e.g. GP, Health Visitor, charity)

Question Title

* 17. If you feel you need more information about your child's condition how are you likely to try to find out? (tick all that apply)

Question Title

* 18. Have you ever felt your child's health needs were not being met?

Question Title

* 19. Is there anything else you want to tell us about your experience of the health system for your child/children?

Now a few questions about the Social Care system

Question Title

* 20. Do you know what help your family is entitled to from the Social Care system?

Question Title

* 21. Do you know how to find out about what help might be available from Social Care and how you can access it?

Question Title

* 22. Have you had involvement with the Social Care system in any of the following ways? Please tick all that apply

Question Title

* 23. If you have help from Social Care, how did you find out about what is on offer?

Question Title

* 24. How easy do you think it is to find good information about Social Care?

Question Title

* 25. Who was your main support when trying to access support from Social Care?

Question Title

* 26. Have you ever felt Social Care was being unsupportive to you as a family?

Question Title

* 27. Is there anything else you want to tell us about your experience of the Social Care system for your child/children?

A few questions about leisure opportunities

Question Title

* 28. Which of the following best describes opportunities for your child (children) to have fun and socialise during leisure time?

Question Title

* 29. How easy do you think it is to find good information about leisure opportunities?

Question Title

* 30. Who is your main support when trying to access leisure opportunities?

Question Title

* 31. Have you ever felt your child (children) was being excluded from accessing leisure opportunities?

Question Title

* 32. Is there anything else you want to tell us about your experience of accessing fun and leisure for your child/children?

Nearly there! Just three final questions to help us understand your experience

Question Title

* 33. If you could identify one or two individuals or organisations which have helped you the most as a parent carer, please tell us a little about them.

Question Title

* 34. If one thing could have been done better for you as a family, what was it?

Question Title

* 35. Is there anything you would have liked to have known at the beginning or your caring role?

Question Title

* 36. If you would be willing to have someone from Carers' Resource contact you to discuss your experiences as a parent carer in more detail please give us your name, phone number and/or email address, whichever is your preferred from of contact.

Question Title

* 37. We would very much like to hear from your children too about their experiences of finding and getting help, advice and services in North Yorkshire. If they would be interested in talking to us please give their name(s) and a phone number or email address so we can contact them. If they would like to complete a survey themselves, the young person's version is: https://www.surveymonkey.com/s/RightHelpYoungPeopleSurvey

T