Right help, right time, right now - parent carer survey Thank you for your time. Carers' Resource is gathering this information and your answers will be used by the Council for Disabled Children when they are deciding how best to support parents of disabled children through the changes in the SEND system using £30 million of government money. Question Title * 1. What is your age? up to 24 25-35 36+ Question Title * 2. What is your ethnicity? White Mixed/Mulitple Ethnic Groups Asian/Asian British Black/African/Caribbean/Black British Other Ethnic Group Question Title * 3. What is the age of your child who has additional needs?If you have more than one child with additional needs please tick all that apply 0-4 5-11 12-16 17-18 19-25 Question Title * 4. What is your child's condition? Please tick all that apply Learning disability Physical disability Autism / ADHD / Challenging behaviour Visual / Hearing impairment Other / Not yet sure (please describe briefly) Question Title * 5. Where in North Yorkshire do you live? Craven Hambleton Harrogate Richmond Ryedale Scarborough Selby First we will ask about your experience with the Education system. If your child is too young for this to be relevant please skip to question 12 Question Title * 6. Does your child (or children) have a statement of special educational needs? (Or a Section 139A Learning Difficulty Assessment, LDA, if post 16?). Tick all that apply No statement (or LDA) In the process of applying for a statement Has a statement Has a Section 139A LDA No longer in education, has employment No longer in education, unemployed Question Title * 7. If you have ever applied for a statement, how did you find the process? very straightforward straightforward difficult very difficult not applicable Question Title * 8. Who was your main support when going through the statementing process or during other difficult times in the education system? Not Applicable Parent Partnership Service Member of school staff Friend Someone working for a charity or voluntary organisation No one Other (please specify) Question Title * 9. How easy have you found it to get information about your rights and those of your child in the education system? very easy easy difficult very difficult Question Title * 10. Have you ever felt your child's school/college/employer was being unsupportive to you as a family? never felt that yes, but easily resolved yes, and I knew where to get help to resolve issues yes, and I didn't know where to turn for help Comment if you want to explain further Question Title * 11. Is there anything else you want to tell us about your experience of the education system for your child/children? Now we will ask about your experience in the Health system Question Title * 12. Does your child have a diagnosis from a health professional? yes no in the process of getting a diagnosis Question Title * 13. If you have ever tried to get a diagnosis, how did you find the process? very straightforward straightforward difficult very difficult not applicable Question Title * 14. Who was your main support when going through the diagnosis process or during other difficult times in the health system? Not Applicable Health Visitor GP Member of hospital staff Friend Someone working for a charity or voluntary organisation No one Other (please specify) Question Title * 15. Have you been given good information about:(tick all that apply if you have more than one child) no information poor information good information excellent information The medical condition itself The medical condition itself no information The medical condition itself poor information The medical condition itself good information The medical condition itself excellent information Sources of emotional and/or peer support Sources of emotional and/or peer support no information Sources of emotional and/or peer support poor information Sources of emotional and/or peer support good information Sources of emotional and/or peer support excellent information Benefits and financial help available Benefits and financial help available no information Benefits and financial help available poor information Benefits and financial help available good information Benefits and financial help available excellent information Question Title * 16. If you feel you were well informed, who gave you good information (e.g. GP, Health Visitor, charity) Question Title * 17. If you feel you need more information about your child's condition how are you likely to try to find out? (tick all that apply) NHS website Condition Specific Charities Friends Internet search Health Professionals Don't know Question Title * 18. Have you ever felt your child's health needs were not being met? never felt that yes, but easily resolved yes, and I knew where to get help to resolve issues yes, and I didn't know where to turn for help Comment if you want to explain further Question Title * 19. Is there anything else you want to tell us about your experience of the health system for your child/children? Now a few questions about the Social Care system Question Title * 20. Do you know what help your family is entitled to from the Social Care system? know all my entitlements know something about my entitlements know very little about my entitlements no idea Question Title * 21. Do you know how to find out about what help might be available from Social Care and how you can access it? yes no not sure If yes, please explain what you would do Question Title * 22. Have you had involvement with the Social Care system in any of the following ways? Please tick all that apply Not known to Social Care Early Intervention Team (CAF meetings etc) Inclusion Officers involved Disabled Children's Team involved Access Short Breaks for my Child Not sure Question Title * 23. If you have help from Social Care, how did you find out about what is on offer? Question Title * 24. How easy do you think it is to find good information about Social Care? very easy easy difficult very difficult Question Title * 25. Who was your main support when trying to access support from Social Care? Not Applicable Inclusion Officer Social Worker/Family Support Worker Friend Someone working for a charity or voluntary organisation No one Other (please specify) Question Title * 26. Have you ever felt Social Care was being unsupportive to you as a family? never felt that yes, but easily resolved yes, and I knew where to get help to resolve issues yes, and I didn't know where to turn for help Comment if you want to explain further Question Title * 27. Is there anything else you want to tell us about your experience of the Social Care system for your child/children? A few questions about leisure opportunities Question Title * 28. Which of the following best describes opportunities for your child (children) to have fun and socialise during leisure time? Nothing suitable available Very little available Specialist provisions available we can access Mainstream provisions we can access with support which is available Mainstream provisions we can access with support which is unavailable My child does not need support to attend mainstream provisions Question Title * 29. How easy do you think it is to find good information about leisure opportunities? very easy easy difficult very difficult Question Title * 30. Who is your main support when trying to access leisure opportunities? Not Applicable Inclusion Officer Social Worker/Family Support Worker Friend Someone working for a charity or voluntary organisation No one Other (please specify) Question Title * 31. Have you ever felt your child (children) was being excluded from accessing leisure opportunities? never felt that yes, but easily resolved yes, and I knew where to get help to resolve issues yes, and I didn't know where to turn for help Comment if you want to explain further Question Title * 32. Is there anything else you want to tell us about your experience of accessing fun and leisure for your child/children? Nearly there! Just three final questions to help us understand your experience Question Title * 33. If you could identify one or two individuals or organisations which have helped you the most as a parent carer, please tell us a little about them. Question Title * 34. If one thing could have been done better for you as a family, what was it? Question Title * 35. Is there anything you would have liked to have known at the beginning or your caring role? Question Title * 36. If you would be willing to have someone from Carers' Resource contact you to discuss your experiences as a parent carer in more detail please give us your name, phone number and/or email address, whichever is your preferred from of contact. Question Title * 37. We would very much like to hear from your children too about their experiences of finding and getting help, advice and services in North Yorkshire. If they would be interested in talking to us please give their name(s) and a phone number or email address so we can contact them. If they would like to complete a survey themselves, the young person's version is: https://www.surveymonkey.com/s/RightHelpYoungPeopleSurvey Done