Autism parent research

Consent for Research: Oakland University Department of Counseling

 
Introduction
I am requesting your participation in a dissertation research study focused on the coping processes of parents who are raising a child with autism spectrum disorder. Ann Liesen, Doctoral Candidate of the Oakland University Counseling Department, is the principal Investigator of this study. She is completing this study under the direction of Dr.Robert Fink, her research advisor, in partial fulfillment of the requirements for her doctoral degree. This consent form will inform you of the research and provide you information to help you decide whether or not to participate in this study.

Purpose of the Study
The purpose of this study is to examine the relationship between perceived stress and quality of life satisfaction of parents of children with autism spectrum disorder and to explore coping and social support conditions that influence this relationship. I am seeking permission to use information obtained through this study for scholarly purposes to increase awareness within professional communities of stress conditions imposed on parents of children with ASD and to help improve psychological and general health practices for supporting parents of children with ASD. If you are a parent raising a child with autism spectrum disorder, ages 0 to 21, in your home at least 50% of the time, I welcome you to participate in this study. For the purpose of this study, a child with an autism spectrum disorder is defined as a child formally diagnosed by a qualified professional with autism, high functioning autism, Asperger’s disorder, or pervasive developmental disorder- not otherwise specified.

Procedures
For this study, you will be asked to respond to an online survey divided into six sections. The survey will take approximately 20 to 30 minutes to complete. The first screen presented in the survey will provide you the opportunity to complete the survey by clicking the “agree” button, or choose not to participate in the survey by clicking the “disagree” button. Many of the questions ask sensitive information about your feelings as a parent raising a child with autism spectrum disorder. Each question in this survey has the option to choose not to respond by clicking “I prefer not to respond”. At the end of the survey, you will be given the option to submit your response by clicking “submit” or to withdraw from the study by clicking “withdraw”.

Voluntary Participation
Your participation in this research study is voluntary. There are no penalties for not participating in this study. If you decide to participate in this research study, you have the right to not answer a question or to stop participating at any time without penalty and without affecting your relationship with the researcher or Oakland University.

Confidentiality
Your responses are completely confidential. I do not collect identifying information such as your name, email address, or any other information that will enable me to identify you through your email address. All data is stored in a password protected electronic format. To help protect your confidentiality, the survey will not contain information that will personally identify you. Only group data will be reported in any published results or professional presentations of the results of this study. No individual survey information will be shared.

Risk
Many of the questions in this survey are personal in nature and may cause emotional discomfort. If you need to contact someone, the following links may assist you in finding a helping professional within your local community.
Common Ground Sanctuary, Oakland County, Michigan: (248) 543-2900
National Board of Certified Counselors: http://nbcc.org/counselorfind
American Psychological Association: http://locator.apa.org/
National Association for Social Workers: http://www.helpstartshere.org/find-a-social-worker
National Directory of Marriage and Family Counseling: http://www.counsel-search.com/
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