Parent's Perspective of the Autism Screeing Process

Survey details

Thank you for taking the time to complete this short survey about your experiences navigating the process of obtaining an autism spectrum diagnosis for your child. By completing this survey, you will help the Virginia Commonwealth University Autism Center for excellence Screening, Diagnosis, and Evaluation Task force determine trends in diagnosis, and areas to recommend change.

If you have any questions, please contact me:
Staci Carr, Ph.D. Candidate
Technical Assistance Coordinator
Rehabilitation Research and Training Center
School of Education
virgina Commonwealth University
secarr@vcu.edu
www.vcuautismcenter.org

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* 1. Within the autism spectrum, what is your child's primary diagnosis?

Autism

Asperger Syndrome

Childhood Disintegrative Disorder

Pervasive Developmental Disorder

Rett's Disorder

No clear diagnosis yet

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* 2. What other diagnoses has your child received? (You may select more than one.)

ADD/ADHD

Brain Damage

Fragile X

Mental Retardation

Seizure Disorder

Sensory Integration Processing Disorder

Tuberous Sclerosis

Landau-Kleffner Syndrome

None

Other (please specify)

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* 3. Please mark the following characteristics that you first noticed as being different or delayed in your child and the approximate ages at which you noticed these differences.

	Years	Months
Lack of eye contact	Lack of eye contact Years menu	Lack of eye contact Months menu
Lack of social smiling	Lack of social smiling Years menu	Lack of social smiling Months menu
Failure to attach to caregiver	Failure to attach to caregiver Years menu	Failure to attach to caregiver Months menu
Slowness in meeting motor milestones (e.g., sitting up, crawling, walking)	Slowness in meeting motor milestones (e.g., sitting up, crawling, walking) Years menu	Slowness in meeting motor milestones (e.g., sitting up, crawling, walking) Months menu
Lack of responsiveness (e.g., to name, suggestions)	Lack of responsiveness (e.g., to name, suggestions) Years menu	Lack of responsiveness (e.g., to name, suggestions) Months menu
Failure to use or respond to gestures (e.g., pointing, waving good-bye)	Failure to use or respond to gestures (e.g., pointing, waving good-bye) Years menu	Failure to use or respond to gestures (e.g., pointing, waving good-bye) Months menu
Language delay	Language delay Years menu	Language delay Months menu
Unusual physical behaviors (e.g., handflapping, rocking)	Unusual physical behaviors (e.g., handflapping, rocking) Years menu	Unusual physical behaviors (e.g., handflapping, rocking) Months menu
Unusual interaction with or attachment to objects	Unusual interaction with or attachment to objects Years menu	Unusual interaction with or attachment to objects Months menu
Lack of imaginative or pretend play	Lack of imaginative or pretend play Years menu	Lack of imaginative or pretend play Months menu
Not playing with other children	Not playing with other children Years menu	Not playing with other children Months menu
Toe walking	Toe walking Years menu	Toe walking Months menu

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* 4. How old was your child when he or she received a formal diagnosis in the autism spectrum? (in years and months e.g., 3 years 2 months)

	Years	Months
Age of diagnosis:	Age of diagnosis: Years menu	Age of diagnosis: Months menu

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* 5. Who gave the formal diagnosis of autism?

Family physician/primary care provider

Specialist doctor

Psychiatrist

Psychologist

Other (please specify)

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* 6. How many individuals or professionals did you and your child see in the process of getting an autism-spectrum diagnosis?

Other (please specify)

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* 7. How satisfied were you with the process of getting an autism-spectrum diagnosis?

Extremely Satisfied

Moderately Satisfied

Not Satisfied

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* 8. What information was most helpful when you received the initial positive screen from the professional?

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* 9. Were you given any resources?

Yes

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* 10. If you were given resources, what resources were you given?

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* 11. Was your child diagnosed during adolescence (10-18 years)?

Yes

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* 12. If your child was diagnosed during adolescents (10-18) or adulthood, how was that process initiated?

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* 13. Were you satisfied with the results that you received by the diagnostician?

Yes

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* 14. Were you given resources to help you with your older child?

Yes

100% of survey complete.