Assessment of Transition |
Introduction
Dear Members,
My name is Shannan Dixon, and I am the director of the Masters in Genetic Counseling program at the University of Maryland. I would like to invite you to participate in a research project that I am conducting evaluating how individuals proceed through medical transition and the barriers they face. The process of medical transition is one that individuals complete as they age and acquire skills to take responsibility for their condition. This process often requires that individuals transfer care from a pediatric setting to an adult internal medicine care provider once the patient reaches a certain age.
This study investigates the knowledge and experiences of individuals who are planning to undergo medical transition or who have done so within the last five to ten years (or been the care provider for someone who went through medical transition.)
You may access the survey by clicking the next tab below. It should take about 15 minutes to complete the survey. Once completed, you may submit the survey online.
This project has received IRB approval from the University of Maryland IRB. If you have any questions about the approval of this study, please contact the IRB at (410) 706-5037. The study is completely anonymous in nature; no identifying information will be asked or required for survey participation and submission. There are no anticipated risks associated with this study. Your participation in this study is completely voluntary, but would be greatly appreciated and is important for the development of a medical transition clinic at the University of Maryland. You may choose not to participate in the survey at any time before or during your completion of the survey.
Please feel free to contact us with any questions or if you need assistance accessing the survey. I greatly appreciate your participation and contribution in the completion of this research study.
Shannan DeLany Dixon, MS, CGC
Director, Masters in Genetic Counseling Training Program
University of Maryland School of Medicine
660 West Redwood Street
Suite 570—Howard Hall
Baltimore, MD 21201
(410) 706-4713
sdelany@som.umaryland.edu
My name is Shannan Dixon, and I am the director of the Masters in Genetic Counseling program at the University of Maryland. I would like to invite you to participate in a research project that I am conducting evaluating how individuals proceed through medical transition and the barriers they face. The process of medical transition is one that individuals complete as they age and acquire skills to take responsibility for their condition. This process often requires that individuals transfer care from a pediatric setting to an adult internal medicine care provider once the patient reaches a certain age.
This study investigates the knowledge and experiences of individuals who are planning to undergo medical transition or who have done so within the last five to ten years (or been the care provider for someone who went through medical transition.)
You may access the survey by clicking the next tab below. It should take about 15 minutes to complete the survey. Once completed, you may submit the survey online.
This project has received IRB approval from the University of Maryland IRB. If you have any questions about the approval of this study, please contact the IRB at (410) 706-5037. The study is completely anonymous in nature; no identifying information will be asked or required for survey participation and submission. There are no anticipated risks associated with this study. Your participation in this study is completely voluntary, but would be greatly appreciated and is important for the development of a medical transition clinic at the University of Maryland. You may choose not to participate in the survey at any time before or during your completion of the survey.
Please feel free to contact us with any questions or if you need assistance accessing the survey. I greatly appreciate your participation and contribution in the completion of this research study.
Shannan DeLany Dixon, MS, CGC
Director, Masters in Genetic Counseling Training Program
University of Maryland School of Medicine
660 West Redwood Street
Suite 570—Howard Hall
Baltimore, MD 21201
(410) 706-4713
sdelany@som.umaryland.edu