The Developmental Disabilities Services Division (DDSD) is looking for your thoughts on key issues as we develop the new three-year State System of Care Plan for people with developmental disabilities. You may answer some or all of the survey questions. Please complete the survey by Friday, January 31, 2014

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* 1. Name: (optional)

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* 2. Please check what best describes you:

Developmental Disabilities Services and Supports - General Questions

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* 3. What is the one thing about individual developmental disabilities services (for you or someone you know) that you think is great?

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* 4. If you could change one thing about individual services (for you or someone you know) what would you like to see?

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* 5. Please tell us what you think is working well with developmental disabilities services in Vermont?

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* 6. Please tell us what you think is not working well with developmental disabilities services in Vermont and how it could be better?

Family Support
Individuals may be funded to receive services and supports in both home and community settings.

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* 7. What ideas do you have to better support families?

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* 8. What ideas do you have to support aging caregivers as they find it harder to care for their family members with developmental disabilities?

Home Support and Independent Living
The most common home support that we fund is called Shared Living. That is when an individual lives in the home of another person who is paid to support the individual. There are also small group homes where 3 to 6 people live (with paid staff) and apartments where 1 or 2 people live (with paid staff or more independently).

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* 9. In addition to the types of home supports described above, what ways can we support people to live in their own homes or with others?

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* 10. What other types of services and supports can help someone to live more independently on their own or with others?

School and Work
Some people receive help to go to college while others receive supports to find and keep a job. There are also people who receive supports to learn new skills and be successful in their community.

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* 11. How can we best support young adults leaving high school?

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* 12. Do you have ideas on how to help people to be more independent at their jobs and not rely as much on paid support?

Extra Supports
Some people need extra supports to keep them safe or to keep those around them safe. For example, some people need to have more than one worker supporting them at a time; technology to provide assistance when no one is around; or a place to live that keeps them and others safe. Others may need workers specially trained in medical procedures because of their health care needs.

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* 13. How can we better support people who have special medical needs?

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* 14. How can we better support people who are a danger to others and/or themselves?

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* 15. What ideas do you have to increase the use of technology to help people be more independent, safe and supported?

Spending money on developmental disabilities services:
A person with a developmental disability may ask their local designated agency for help and apply for services. Because we don’t have enough money to serve everyone, we try to figure out who needs the services the most. We use “Funding Priorities” to help us make that decision. Below are the six current funding priorities for FY 2014:

1. Health and Safety: Ongoing, direct supports and/or supervision are needed to prevent imminent risk to the individual’s personal health or safety. [Priority is for adults age 18 and over.]

2. Public Safety: Ongoing, direct supports and/or supervision are needed to prevent an adult who poses a risk to public safety from endangering others. [Priority is for adults age 18 and over.]

3. Preventing Institutionalization – Nursing Facilities: Ongoing, direct supports and/or supervision needed to prevent or end institutionalization in nursing facilities when deemed appropriate by Pre-Admission Screening and Resident Review (PASRR). [Priority is for children and adults.]

4. Preventing Institutionalization – Psychiatric Hospitals and ICF/DD: Ongoing, direct supports and/or supervision needed to prevent or end long term stays in inpatient public or private psychiatric hospitals or end institutionalization in an ICF/DD. [Priority is for children and adults.]

5. Employment for High School Graduates: Ongoing, direct supports and/or supervision needed for a high school graduate to maintain employment upon graduation. [Priority for adults age 19 and over.]

6. Parenting: Ongoing, direct supports and/or supervision needed for a parent with developmental disabilities to provide training in parenting skills to help keep a child under the age of 18 at home. Services may not substitute for regular role and expenses of parenting. [Priority is for adults age 18 and over.]

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* 16. Do these Funding Priorities make sense? Which priorities do you think are the most important?

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* 17. If you were to change the Funding Priorities, what changes would you make?

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* 18. In order to use the funding we have the best way possible, what ideas do you have on how we can save money?

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* 19. Do you have any other comments you wish to share?

Thank you very much for your time in completing this survey!

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