Question Title

* 1. INFORMATION SHEET FOR PARTICIPANTS

Dear Parent/Carer,

We are researchers from the Department of Child Health within King's College London School of Medicine and we would like to invite you to participate in this original research project. You should only participate if you want to; choosing not to take part will not disadvantage you in any way. Before you decide whether you want to take part, it is important for you to understand why the research is being done and what your participation will involve. Please take time to read the following information carefully and discuss it with others if you wish. If you would like further information before deciding whether or not to participate, please contact us using the email address below.

Our research involves developing a new method for assessing lung function that is likely to be more suitable for younger children. In order to ensure that our ongoing research addresses problems that are important to those looking after children with asthma, we would like to get some information about the processes that people have gone through to get a diagnosis of asthma or wheezing illness in preschool children. The answers to the questions in this survey will help us to design our ongoing research studies to better answer the questions that are important to you and your child.

If you are the parent or carer of a child who was diagnosed with asthma or a wheezing illness before five years of age, then you are eligible to participate in this survey.

This survey asks questions about the age at which your child first started having breathing problems, when they were diagnosed with asthma, how long it took to obtain a diagnosis and from whom, as well as details of any testing they received from healthcare professionals. The survey also asks for some information about the emotions you experienced (or are still experiencing) during the process of seeking a diagnosis, and then finally about your attitudes towards research in this area.

All answers that you give are confidential. At no point during this survey will we collect any information that will allow us to identify you or your child. If at any point during the survey you do not wish to continue, you can simply leave the website, though the answers you have already given will still be included. Once you have completed the survey, you will be unable to withdraw your responses. By clicking "next" or "finish", this implies your consent to use the answers you have already given. The information we get from this survey will be used to help us design our future research studies. We may publish the results in medical journals as well as on the Asthma UK website. It will not be possible for anyone to identify you or your child from the information we publish. We may also keep the information that we collect from this survey for use in designing future studies; again, it will not be possible for anyone to identify you or your child from the information we store.

We do not anticipate that there will be any specific benefits or risks to you as a result of completing this survey. If you do find recalling your child's asthma diagnosis upsetting, we would recommend that you use Asthma UK's online discussion and support forums. If you have any questions or require more information about this study, or if this study has harmed you in any way, please contact Vicky MacBean, principal investigator, via secure email (victoria.macbean@kcl.ac.uk).

Some questions have the option for you to enter additional information about your experience of getting an asthma diagnosis for your child. We may wish to quote directly from the answers to these questions in any publications. Please indicate below whether or not you are happy for us to use such quotations.

Thank you again.

Vicky MacBean (Physiotherapy Research Associate)
Dr Gerrard Rafferty (Senior Lecturer)

Do you consent to involvement in this study?

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