We need your opinion! (This survey is intended for family members of children and youth with disabilities.)

Recent data and stories from families of children with disabilities, like yours, tell us that many who are eligible for long-term supports do not know about these programs and may not be getting what they and their families need.

One solution that disability advocates have proposed is to develop a group of Family Navigators located around the state who would walk alongside families like yours, if you would like, and help you understand what supports are available and how they might help your child. A Family Navigator could help families like yours with understanding and accessing disability-related supports for your son or daughter with disabilities such as health care, community supports, school services, transition services and more. 

Wisconsin family advocacy organizations (see list at end of survey) are wondering what you think about having Family Navigators available to all families who want them. Please take just a few minutes to answer the questions in this brief survey.

Your feedback will be compiled with other families and shared with the state officials and legislators. Our goal is to reach 500 families throughout Wisconsin.

This survey will take less than 10 minutes to you to complete.

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* 1. Please tell us about the qualities of a family navigator person that you would find helpful to your family. (Mark each of these items as either Not important; Somewhat important; Very important; Most important.)

  Not Important Somewhat Important Very Important Most Important
Has personal experience of being a caregiver for someone with a disability.
Has a proven ability to help families coordinate services.
Lives in the same community that families live in so they know what resources are available in that community.
Understands and demonstrates respect for the diverse values and cultures of individual families.
Is someone who is from the specific culture or background of underserved families.
Is bilingual or recognizes the need for and can access interpreter supports.
Has a college degree in case management, social work or other related area.

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* 2. Families have told us that a navigator must know and be willing to learn about Wisconsin service systems, benefits, and supports available to children and adults with disabilities and their families.  Rank which systems are most important for a family navigator to know about in order to help your family.

  Not important Somewhat important Very important Most important
Children’s Long-Term Support Programs
Birth to Three and Early Intervention Programs
Special Education
Community resources, activities and recreation
Respite opportunities
Transition supports
Social Security eligibility and benefits
Financial planning
Supported Decision Making and Guardianship
Division of Vocational Rehabilitation Services
The Adult Long-Term Services System

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* 3. What other qualifications are important for a Family Navigator to have? 

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* 4. What concerns do you have about a Family Navigator person who might want to help your family?

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* 5. If Family Navigators are hired to help families, they will be asked to do many different things. Please rank the following duties. (Mark each statement as either: Not important; Somewhat important; very important; Most important.)

  Not important Somewhat important Very important Most important
Build a trusting, collaborative partnership with your family, including extended family members as needed.
Recognize and support your family’s readiness, willingness, and ability to participate in accessing services.
Meet with your family in your home or a place in the community and contact you as needed; daily, weekly, monthly.
Be able to meet after hours or on weekends, as needed.
Support your family as you take steps to access services including attending meetings, participating in phone calls, and making contacts.
Develop a system of record keeping with your family regarding contacts and resources.
Maintain confidentiality of family records and personal information.
Assist your family in identifying training opportunities to increase knowledge and skills to support your family member or yourself.
Conduct presentations and trainings to build families’ skills and the knowledge to support your family member.
Ask you or your family what they need and help you address your most pressing family needs at the time, even if they are not directly related to a child’s disability support program.
Help to connect you with families with similar experiences.
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