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WE THE PATIENTS: NATIONAL PATIENT PERSPECTIVES POLL

This poll was created by patients who have lived through it. If you have ever tried to navigate the healthcare system while sick, or while helping someone you love, you already know how fast it can fall apart. You are expected to understand insurance, costs, approvals, and paperwork at the exact moment you have the least capacity to deal with any of it.

Most people assume this is just how it works. It is not. These experiences are happening to millions of Americans every day, and until now, no one has collected that data independently, on behalf of patients, without an institutional agenda shaping the results.

The We The Patients National Patient Perspectives Poll changes that.

Your answers are anonymous. No identifying information about you is collected or sold. Aggregated, anonymized findings will be published publicly and shared with aligned partners solely to document where the system fails patients and what enforceable protections would fix it. You are not a data point. You are a constituent.

Any questions can be directed to hello@wethepatients.org.
SHARE YOUR VOICE TODAY!
Section 1: Who You Are
What age range best descibes you?(Required.)
What best describes you? (Select all that apply)(Required.)
What is your home ZIP code?
Your ZIP code is the single most important field in this poll. It allows us to show elected officials in your congressional district exactly what their constituents are experiencing. We do not collect your name, address, or any other identifying information. Your ZIP code tells us where you live. Nothing else(Required.)
SECTION 2: Your Starting Point
Think about the last time you had a serious health issue or diagnosis. Which of the following were already in place before your first appointment, emergency room visit, or any engagement in seeking medical care? (Select all that apply)(Required.)
At that moment, how did you feel trying to navigate the system? (Choose One)(Required.)
SECTION 3: What Actually Happened
In the past year, did you experience any of the following? (Select all that apply)(Required.)
How long did it take to resolve your most recent insurance or billing issue?(Required.)
SECTION 4: Cost and Behavior
In the past 12 months, have you delayed or skipped care due to cost or confusion? (Select all that apply)(Required.)
Have administrative issues (insurance, billing, approvals) ever made your condition worse or more stressful?(Required.)
SECTION 5: Navigation Reality
For the following tasks, select what best describes you:
Finding an in-network doctor(Required.)
Understanding a medical bill(Required.)
Handling an insurance denial or appeal(Required.)
SECTION 6: Awareness of Rights
Before today, did you know you have the right to:
Appeal an insurance denial(Required.)
Get a full copy of your medical records(Required.)
Bring an advocate to your appointment(Required.)
SECTION 7: The Potential Fix
If someone had helped you organize your insurance, paperwork, and approvals before your first appointment, how would that have impacted your experience?(Required.)
When it comes to managing your healthcare, what kind of assistance would help you most right now? (Select up to 3)(Required.)
SECTION 8: Open Reality (Optional but Extremely Helpful!)
In your own words, what has been the hardest part of navigating the healthcare system?(Required.)