Informed Consent

Informed Consent
Principal Investigator:  Jennifer Vetter, M.S.
Faculty Supervisors:  Jennifer Gillis, Ph.D., BCBA-D & Raymond G. Romanczyk, Ph.D., BCBA-D 

Title of Project:  An examination of parents' retrospective treatment decisions for their child with ASD

Purpose of the Study
You are invited to participate in a research study of how parents make decisions regarding treatment for their child with ASD. We hope to learn about the factors influencing parents’ treatment decisions, and ultimately use that knowledge to develop ways to help parents gain access to evidence-based treatments. You were selected as a possible participant in this study because you are a parent of a child with ASD.

Description of Study Procedures
If you decide to participate, you will be asked to answer a series of questions about yourself and your child. The questions are estimated to take approximately 30 minutes to complete. Potential inconveniences related to the study procedures include fatigue due to the estimated length of time for completion and discomfort as a result of disclosing health related information regarding your child. If at any point you become fatigued by the task, you may take a break (without closing your web browser) and complete the survey at a later time.

Potential Risks
Beyond potential fatigue related to task demands and discomfort as a result of disclosing health related information regarding your child, the study is not expected to involve any more than minimal risk to participants, which would normally be experienced on a day to day basis.

Potential Benefits
There are no direct benefits to participants in the present study; however, participants will be offered the opportunity to enter a drawing to win one of five $50 gift cards.

Alternative Procedures
There are no known alternative procedures. The only alternative is not to participate.
Confidentiality and Access to Records
Safeguards are in place to ensure the confidentiality of all participants and the information you choose to provide. You will not be asked to provide any information that would allow your responses to be directly tied to you or your child. Data will be password protected and only accessed in secure locations by experienced and approved members of the research team. This research will remain confidential unless we are required by New York State Law to report harm to yourself or your children.

Participant Payment

As a thank you for participation, all participants will be able to enter their name in a drawing for the chance to win one of five $50 gift cards. By accepting payment(s) for participating in this study, certain identifying information about you may be made available to professional auditors to satisfy federal and state reporting requirements, but confidentially will be preserved. Please note that if you earn $600 or over in a calendar year as a research subject, these earnings will be reported to the Internal Revenue Service.

Emergency Care and Compensation for Injury
If you are injured as a result of participating in this study, you and your insurance carrier are assuming full financial responsibility for any injury that you may suffer as a result of participating in this study. No other form of compensation is being offered, but that does not mean you are giving up any of your legal rights. In the event of a research related injury, contact Jennifer Vetter at (607)-777-2829.

Voluntary Nature and Withdrawal
Your decision whether or not to participate will not affect your future relations with Binghamton University and/or the Institute for Child Development. Your participation is voluntary; if you decide not to participate you are free to withdraw your consent and to discontinue participation at any time without any penalty. If you decide to discontinue participation before the survey is complete, simply close your web browser. Any significant new findings developed during the course of the research which may relate to the subject’s willingness to continue participation will be provided to you in a timely manner.

Conflict of Interest
There is no conflict of interest regarding the primary investigator’s involvement in this study. The primary investigator does not stand to profit from the results of the study either personally or financially.
Questions and Contact Information
Before you click accept, please ask questions on any aspect of the study that is at all unclear to you. If you have any additional questions, concerns, or complaints later or wish to report a research related problem, Jennifer (607-777-2829) will be happy to answer them. If at any time you have questions concerning your rights as a research subject or you have questions, concerns, or complaints about the research you may call Binghamton University's Human Subject's Research Review Committee at (607) 777-3818.

1. You are making a decision whether or not to participate. By clicking agree, you are providing an electronic signature which indicates that you have decided to participate having read the information provided above. Otherwise, please exit this window.