The important perspectives of women diagnosed with ovarian cancer

Participant information and consent form

You have indicated a willingness to participate in the OCA Diagnosis, Family History, Risk and Genetic Testing: the important perspectives of women diagnosed with ovarian cancer. 

In 2015 Ovarian Cancer Australia surveyed women with ovarian cancer to better understand their experiences of genetic testing and clinical trials. 

The 2015 survey yielded excellent information and in our 2018 survey we want to build on that information to continue to track changes in awareness and attitudes toward genetic testing, access to treatment and any follow-on trends. 

The 2018 survey is designed to increase our understanding of your experience leading up to and including diagnosis. The second section explores your thoughts and experiences in relation to family history and genetic testing. This survey is aimed at women who have been diagnosed with ovarian cancer. Although the link will be open to anyone who wishes to participate, OCA is not specifically seeking the views of family members and carers at this current time.

This is important to help in our efforts in raising awareness on the link between family history and ovarian cancer and in understanding how referral pathways and guidelines for genetic testing and clinical trials might be improved. Please help us by completing this survey consisting of 32 multiple choice questions. It should take no longer than 20 minutes.

Your survey responses will remain anonymous and no contact information will be collected.

A report of survey findings will be prepared using de-identified (unable to be linked to any particular individuals) and combined data only. This report will be published and available on our website later in the year.

If you consent to your responses being used in the development of this report, please indicate so below.

Please contact us if you have questions or concerns regarding genetic testing or you would like more information.

If at any time you feel uncomfortable with any of the questions, please do not feel obliged to answer. Just skip to the next question. If you would like to speak to us regarding any aspect of this survey, please ring Ovarian Cancer Australia on 1300 660 334.

* 1. I have read and understood the included participant information for this survey and consent for the data I submit through this survey to be used by the OCA as outlined above. (Please note that any partial responses will be automatically included in our survey data.)

* 2. What is your age range?

* 3. Do you speak a language other than English?'

* 4. Do you identify as Aboriginal or Torres Straight Islander ?

* 5. Do you identify as:

* 6. What State do you live in?

* 7. Do you live in:

* 8. Did/do you use