Sexual Health and Kidney Disease: An Environmental Scan of the Beliefs, Perceptions, and Priorities

Investigators: Sandi Dumanski

Affiliations: University of Calgary, Cumming School of Medicine (Calgary, Alberta, Canada)

Funding: This study has no current funding

Background: Researchers at the University of Calgary in Canada are conducting a study. This consent form is only part of the process of informed consent. It should give you the basic idea of what the research is about and what your participation will involve. If you would like more detail about something mentioned here, or information not included here, please ask a member of our research team. Take the time to read this carefully and to understand any accompanying information.

Why is this study being done? Sexual dysfunction is a common complication of kidney disease, but discussions about sexual health are uncommonly addressed by kidney care teams. Canadians living with kidney disease have identified sexual health as a top research priority, but the most important questions about sexual health in kidney disease are not yet known. This study will aim to assess the beliefs, perceptions and priorities of Canadians living with kidney disease as it relates to their sexual health.

What will happen if I participate in this study? We are inviting Canadians living with kidney disease to complete a voluntary, anonymous survey about their beliefs, perceptions and priorities regarding sexual health and kidney disease. If you volunteer to participate in this study, you will be asked to complete an online, anonymous survey that takes approximately 5-10 minutes to complete. No personal or identifying information is being collected, and your responses will remain anonymous.

What are the potential risks or discomforts? Some questions may cause personal discomfort, as we ask about your sexual health and sexual health care. Please be aware that you do not have to answer any questions you do not wish to. 

What are the potential benefits? There are no direct benefits to study participants. However, the results of this research may be used for future research planning, which may lead to an increased understanding of sexual health in kidney disease.

Do I have to participate? Participation in this study is completely voluntary and you may discontinue your participation at any time. All participants have the option to not answer questions throughout the survey and still continue.

Will I be paid for participating or do I have to pay for anything? You will not be paid for participating and you will not incur any expenses as a result of this study.

Will my records be kept confidential? All data will be kept confidential and stored securely. SurveyMonkey is an online survey platform with servers located in the USA and as such is subject to U.S. laws. In particular, the US Patriot Act, which allows authorities access to the records of internet service providers. If you choose to participate in the survey, your responses to the survey questions will be stored and accessed in the USA.  Survey responses however cannot be linked to your computer. All data are encrypted and stored directly on its servers. Researcher access to the survey data is password-protected and the transmission encrypted. 
How long will my information be kept? In accordance with the University of Calgary’s Data Retention Policy, we will keep data for five years after the completion of the study.

Who can I contact if I have questions about this study? Please feel free to contact the Principal Investigator with any questions or comments about this study. 

This study has received approval by the University of Calgary Conjoint Health Research Ethics Board (REB21-0411). If you have any questions concerning your rights as a possible participant in this research, please contact the Principal Investigator or the Conjoint Health Research Ethics Board, University of Calgary at +1 403-220-7990.

Thank you for considering participating in this timely research study.

Dr. Sandra Dumanski – Principal Investigator
University of Calgary, Department of Medicine
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